Interrupting Forteo for two weeks

Posted by delongak @delongak, Wed, Jul 31 8:05am

I'm 66, female, and have been on daily Forteo injections since March. I have a two-week trip in October during which I will not have dependable access to refrigeration, so I expect to stop the injections for two weeks and resume when I get home. Has anyone here done something like this? What was your experience? Any advice? Your comments can help me be more informed when I discuss my plan with my endocrinologist. Thanks!

I am also on Forteo (age 65 and started in April) and recently took a trip where I was concerned about keeping it cold. I found an item on Amazon that consists of a wide-mouth thermos using an oblong plastic chill-pack that worked very well. I have some high-low thermometers, so placed on of those in the thermos. This worked very well to keep the Forteo between the 2-8 degrees C (or 36-46 degrees F) for easily 48 hours. So if you have some access to refrigeration such that you can re-freeze the chill-pack in between travel stops, that could work for you. (I can send you the link to the item if you want.). Otherwise, I can’t really find anything definitive about stopping Forteo for a two-week period. So hopefully your endocrinologist will be able to tell you what the impact is to stop for two-week after doing the injections for 6+ months, and then resuming. I’ll also be very interested in hearing what he/she has to say.

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@jmanj

I am also on Forteo (age 65 and started in April) and recently took a trip where I was concerned about keeping it cold. I found an item on Amazon that consists of a wide-mouth thermos using an oblong plastic chill-pack that worked very well. I have some high-low thermometers, so placed on of those in the thermos. This worked very well to keep the Forteo between the 2-8 degrees C (or 36-46 degrees F) for easily 48 hours. So if you have some access to refrigeration such that you can re-freeze the chill-pack in between travel stops, that could work for you. (I can send you the link to the item if you want.). Otherwise, I can’t really find anything definitive about stopping Forteo for a two-week period. So hopefully your endocrinologist will be able to tell you what the impact is to stop for two-week after doing the injections for 6+ months, and then resuming. I’ll also be very interested in hearing what he/she has to say.

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@jmanj , Good morning. Thanks for connecting with us. A quick thought. I get a medication shipped. It comes in a very thick walled styrofoam square box. There is room for ice. Mine is scheduled for delivery today.

There is also a recent post from a lady who had a solution. Let me see if I can find that post.

I have lots of Forteo information, I will check that out. Have you looked on the website? My last suggestion would be to ralk to your pharmacist. Have a joyful day. Chris

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@artscaping

@jmanj , Good morning. Thanks for connecting with us. A quick thought. I get a medication shipped. It comes in a very thick walled styrofoam square box. There is room for ice. Mine is scheduled for delivery today.

There is also a recent post from a lady who had a solution. Let me see if I can find that post.

I have lots of Forteo information, I will check that out. Have you looked on the website? My last suggestion would be to ralk to your pharmacist. Have a joyful day. Chris

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Thanks, Chris. My Forteo packages are also shipped in styrofoam box with ice packs, three months' worth at a time. There is good information for travelers on forteo.com and even some links to the US State Department website. Traveling itself isn't the issue, it's that period when I won't be able to keep the stuff chilled!
I'm contacting my endocrinologist today. Still hoping to hear experiences of anyone has stopped and restarted this medication.

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@delongak

Thanks, Chris. My Forteo packages are also shipped in styrofoam box with ice packs, three months' worth at a time. There is good information for travelers on forteo.com and even some links to the US State Department website. Traveling itself isn't the issue, it's that period when I won't be able to keep the stuff chilled!
I'm contacting my endocrinologist today. Still hoping to hear experiences of anyone has stopped and restarted this medication.

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@delongak, Good evening. I think you know everything that I know. I have reviewed the promo booklet, visited the website and read the pamphlet attached to the medication. Nowhere is there any information about taking a vacation from the medication. You can call
800 545-5979 for assistance. Or you can join the online community and ask your questions.

I was concerned about this issue since I fly back and forth from MN to CA. So….I chose Tymlos. Hopefully, that will work because it does not require refrigeration after it has been opened. However, I am a bit concerned about getting the next dosage if I am in another state. It kind of feels like I am shackled to one place or the other for another 17 months. At 77 years old…being tied down and shackled because of medication isn't much fun.

Have a lovely sleep tonight. Let me know what you find out so I can inform others. Chris

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Thank you Chris. Here's what my doctor wrote back to me:

"You may hold the Forteo for the trip and resume when you return." Then she also included this package insert info:
"Lilly has not identified any safety concerns, including adverse reactions or side effects, associated with temporary interruption or withdrawal of Forteo® (teriparatide [rDNA origin] injection) therapy during our clinical studies or follow-up analyses (Neer, 2001; Orwoll, 2003; Lindsay, 2004; Saag, 2007; Saag 2009; Silverman, 2013).
It is not known how stopping and starting teriparatide effects how it works as teriparatide was studied as a once daily injection without interruptions for 24 months (Forteo Package Insert, 2012)."

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