Internal vibrations/crawling

Well John, I wonder if you have any ideas for me to try. I’ve responded here few times about my internal Vibrations. I’ve had them daily since Sept of 2020. Starting in my left foot and moving up to my knee then bam the other leg all way up to my upper waist area in just 2 months. I’ve had them faithfully for 3 yrs 4months now. Neurologist or my Neurosurgeon can’t figure it out. They say it’s spinal or a brain issue. I’ve had numerous MRI’s and CT scans n only thing they see is a cyst in my mid upper spine that could be preventing fluid from flowing through normally. It’s like a motor in my body 24/7. I wake up to it and I go to sleep with it. I try to figure ways to explain vibration, to a bubbling pot at my feet and I can feel the boiling like water rush through my body. But I don’t feel that water sorry, it’s just the motion I’m feeling from it. I’m sitting on this and can’t get cozy and I’m not able to even enjoy the vibration. This is miserable. My Dr just did another complete BW on me and I’m good cept for my Thyroid is still not balanced. So lowering dosage again. Got so low I lost a lot of hair. I lost well over 100 pds. My body feels like I’m racing but not getting anywhere. I’ve cried so many times on my family. Had brain scans. What us this vibration from? Why can’t Drs around here or an hour away like U of M hosp. Figure out what’s causing this ? I know I’m not the only one, I see many on here complaining of the same problem. I wasn’t doing anything when all this started. I was going to a Dr appt and started feeling it in my foot. I have had a spinal cord Stimulator before. I had it for RSD reasons put in 2007 and removed in May 21’. To me it’s the same vibration as having the stimulator still in me turned on full blast. Now if you or anyone you know has one of these then you know the same vibrations I’m talking about. My husband I know is tired of me whining about this, after all it’s been over 3 years now n nothing has been done to stop it. I just need some little hope that someone else having this and was cured or going through being on the right track. I need a little hope. I can’t deal with this any longer. I can’t do this anymore. Who is there can help get rid of these ? It’s same feeling from bottom of my feet to my upper waist. It’s a miserable life. Please send some encouragement my way. Thanks and God bless our Country!

Jump to this post

@champton, I'm sorry to hear that you haven't found any relief for the internal vibrations. You said that MRI's and CT scans revealed you had a cyst on the mid upper spine area. I know you also mentioned the U of M hospital. Is that the University of Minnesota Medical Center hospital which is also a teaching hospital? Just wondering if it might be worth seeking help or a second opinion on possible causes of the internal vibrations including if the cyst could be compressing nerves in the spine.

Jump to this post

Thank you John for your response. No it’s actually Ann Arbor Michigan I had another MRI done today. That was suggested from seeing an Xray. I’m praying so hard that someone finds what’s going on with me. This is so miserable and I’m sorry but I’m glad I’m not the only one with this problem. How can something so mentioned often by others that No Dr knows what’s going on? I have a hard time sleeping. If ya look at my Fitbit you’ll see I don’t sleep much. I don’t know how my body is able to handle just 2-4 hrs sleep a night. And that’s bout it. Some nights it’s 1 hr. Others I might get lucky and have 5 hrs but that’s broken up for bathroom breaks. My body feels like it’s ticking so darn fast. I’m taking 300mg Gabapentin 3 times a day and a muscle relaxer. But I’m not relaxed at all. My husband and I have been looking into the Mayo Clinic’s after the Neurologist from Ann Arbor mentioned about my next step could be the Mayo Clinic. So what would you suggest ? I have great Insurance. Just a big deductible, ouch. I’ve met my deductible by April or so every year since these Vibrations started. And that’s a big fat $9500. My husband has Medicare. I’ve got Blue Cross till I reach 66 in couple yrs. I’ve looked up about Ablations and finding nerve roots etc. on trying to locate the problem area. I really can’t do another full year of these. Most people would’ve checked out by now. I have a great Family support. Our Daughter says that I need a $Jar, that each time I say “Darn these Vibrations “ or “ My Vibrations r Angry today” that I should put a quarter in a jar, but my husband says that’ll break him. Which Mayo Clinic do you think would benefit me ? I’ve been to so many Drs that it’s not funny. Why can’t they figure this out ? Or is it because the Drs are swamped with so many new Patients, Covid, Flu, that they’re rushing people in and out the door as fast as they can ? Hardly catching a breath for themselves ? Grabbing easy $ and suggest on sending them with a referral to another Dr ? I’m seeing a pattern here. I know I’ve probably run some my Drs ragged from all my tests n they can’t find anything. My Body feels like it’s grinding hard inside. I can just about hear the vibrations. One Dr asked me to hold out my hands in front of me and he laid a sheet of paper on top my hands. Well you could clearly see the paper move and I didn’t think I had any external vib. I was lil fascinated to see something diff. But what are these ? Other people has them, do they come/go to the Mayo Clinic’s and get any relief or answers ? My daughter scolds me for getting on my phone and doing Dr. Google. But I’m trying to help n find out what others have done to get relief. I see emails now that “come n participate in a free trial for Vibrations.” Lol no way ! I’m not that gullible. My ears are ringing so loud w Tinitus past 8 years. I have an appointment in March to see a ENT. My new Dr is trying to help me. She ordered a complete BW panel n to check for Autoimmune Diseases. I’m clear of that. She also had me tested for ticks. I’m good. But it’s a struggle to get my Thyroid balanced. I have Hoshimoto since 2009. Lost a lot of hair n was given men’s Rogaine 50mg twice daily. It’s starting to come back. I lost 170pds. But the Vibrations have been the longest of any problems. So what gives? How can I get a Dr to take me seriously ? My Husband goes with me to all my Dr Appts now. I have a slight case of lil bit Dementia. So it’s good he’s with me cause I forget easily. That Spinal Cord Stimulator I had didn’t really do anything for me. It might’ve helped the first 3-5 yrs. Then felt like no use. All I got out of it was just what I’m feeling now, Vibrations!
They decided to take it out knowing that it wasn’t for me and so that I could have MRI’s. Then they was concerned about the main lead that was up in my mid back, approximately about the same area that the lead was in. But I can’t get a Dr attn about that area. I’m being sent here n there being passed onto the Next Poor Dr. who he has no idea what’s going on. I’m thinking they’re seeing the same Merry-Go-Round as the Drs before them. As much as I’m tired of Drs I’m still holding on Hope, that Yes, the Next Dr understands n has an idea to do this or that!! Not just to send me on to someone else. Are you understanding me ? I’m completely a Sane person, maybe a lil off my rocker at times, but I’m actually messing around with my family. I’ve had so much happen to me since I had my Hysterectomy in 2009 and nearly died. My dear Husband saved me. I was sent home and then that night I was delerious, talking out my head. My kidneys shut down, BP was 30, My R. Lung collapsed. I was Septic. Talking out me head and Yellow, where my husband rushed me to the Hospital. Had a full blood transfusion. Dr said I might’ve had a Teaspoon of Hemoglobin n my body. I was in icu for a week. I didn’t wake up till 4 days later. I was so doped up in there. I had to learn how to walk again, let alone wash myself. I was in there 2 weeks n sent home to have my Husband do my picket line every nite. My Husband did bring that up recently if Sepsis could be the reason for all my ailments ? I know it took a few months to start feeling good. And when I say I didn’t wake up, I mean I was in the clouds. I was in a bright white room laying in that bed and seeing about 30-40 people around the bed and they were greyish see through fog. IMy husband nearly lost me. I had 7 Drs working on me. Had C-Diff (nasty) it was rough. I know I prob have some degree of PTSD mentioned by my Dr. at that time. Great Dr of 30+ yrs till she n her husband retired to help the Vets. But she thought I had some suffer n sent me to see a Dr for that. But whew, so many Drs and like I said being passed onto the next Poor Dr. I’m ok, I just need some lil bit of light that with all the people on here I see posting about Internal Vibrations,, What have they accomplished with say, Drs at the Mayo ? Because right now I’m seeing Mayo clinic as my next Life Saver 👍where can you send us for the right Help ? Again,, Thanks for your Response, I Pray for some Light on this..
God Bless our Country!

Jump to this post