Internal vibration with "nerve firing"

Posted by brayimee @brayimee, Aug 2, 2020

Hello everyone! I am so very happy to have found MayoClinic discussion boards.

My doctors are becoming very stumped on my case and I am becoming more hopeless as to them finding the issue. I am a 41 one year old mother of 5 and was incredibly active with weight lifting, HIIT workouts, very active in my home and with my kids. One day in early April, I just stopped working. This has taken a huge toll on me and my family as I am resting 90% of the day as to stay comfortable.

my story is long, so I will shorten it for a quick read. about 5 months ago, the left side of my body decided to cause me major issues. I feel like it completely shut down. I get terrible internal vibrations and when they stop, I feel this strange release and I get different nerve pains in my left side and right glute. Following these "episodes" my legs get so terribly weak (sometimes overall weakness), I feel like I am going to fall and my bowel and bladder continually become disrupted. I started to monitor my pulse during these episode and see that much of the time they work together somehow.
**An example: I will go up my stairs and my heart rate will Increase to 150 and I will notice I am also having an internal vibration. When it stops, I feel this flow through certain nerves, my legs get very heavy and weak, I have had numbness/tingling, and sometimes I get an urgent need to urinate or I start feeling my Bowels moving and making noises. I told many doctors I feel like something is misfiring, pinching nerves or causing vascular issues, but no one can find anything. I feel the best when I am laying down on my back and just resting. I use tennis balls along my spine to try and help pass gas (I feel like my intestines shut down constantly). Many times when I am just resting, my pulse will climb and I will start feeling all the nerves sensations and weakness setting in. The vibrations happen all day and wake me up in the night even on medication. Its a continuous cycle all day everyday and it's so very odd. I admit it gets me down going from incredibly fit and healthy to laying in bed, having bowel issues, bladder issues and very weak legs.

I'm looking to connect with those of you who have any suggestions or knowledge on my particular issue.

I had a battery of tests thus far : 2 CTS with contrast, Blood work, urinalysis, Thoracic MRI, Brain MRI (Pending results), ultrasound, HIDA scan, wore a heart monitor for 2 weeks, ECHO, 2 EKGs, Endoscopy, Multiple X-rays, Lumbar MRI (pending), I am in PT and seeing a Chiropractor, vaginal ultrasound. I am sure I am missing something, but I have been scanned pretty thoroughly.

Findings: 2 hemangiomas T1 & T11( where I get back pain), PACs, SVTs (Never have had heart issues), bochdalek hernia ( 1st CT, 2nd CT didn't show).

Specialists/Doctors: Cardiologist, GI, Neurologist, OBGYN, Primary care doctor, PMR doctor, Physical therapist, Chirop

Thank you for reading!!

Interested in more discussions like this? Go to the Brain & Nervous System Support Group.

jralph | @jralph | 2 days ago

Have you been evaluated for arachnoitis?

kjoed53 | @kjoed53 | 1 day ago

Seeing a chiropractor without a diagnosis may not be helping your situation. Quite possibly you are dealing with more than one malady, making diagnosis more difficult. Hopefully your pending MRIs will shed some light on your situation. In the meantime, a therapist may help you navigate the psychological strain that you are feeling from the change in your life.

phobson | @phobson | 9 hours ago

I also have been dealing with the feeling that my nerves are firing constantly. I get no relief! This has been happening for over a year and I have a terrible neurologist. So much so that even when I told him what I was going through he did not perform any tests to diagnose me but only provided Tegretol which nearly killed me and then he doubled my Lyrica to the maximum daily dose allowed by law. I was not told by him or the pharmacist that I should work up to this dosage because I had only been taking half that much prior to. So once again I had terrible terrible side effects. At the same time this doctor and my PCP would no longer write my prescription for clonazepam. I know that they do not like prescribing this to older people because it affects their memory. Well my memory had already been affected because I was on one or another of this kind of medication for years. I don't have anxiety! I have a troubling condition and like the lady who made the post about this condition, it's cycles. During the constant firing of my nerve endings, I will have different feelings that poke out in my body. A stabbing pain in one part followed by itching in another part followed by feeling like I am floating while in another part feeling like my brain is popping out of my skull because it is pounding. Most of these pains do not hurt but they send off alarms from my brain. If anyone can help direct me in the right way to get help, I would greatly appreciate it. And please help the woman who made the original post that had the same feelings I have.