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Interesting case of new lesions, pain, but decreasing CA19-9
Yesterday I went to ER with intense and acute pain in my right side. After CT&US it was found that my previous lesion in liver of 0.9cm which received SBRT radiation in October was now 4x5.7 cm and presented itself as “vague” or “subtle” inferior hepatic lesion but couldn’t be distinguished on US. I had a US because a CT showed possible edema in gallbladder. Also, a new 2.4cm lesion occurred next to the existing lesion. I just received news last Friday that my CA19-9 had decreased from 16 2 weeks ago to 8. This is weird as my tumor marker has been a very good indicator for me in the past. My monocytes yesterday were quite elevated from 2 weeks ago. My oncologist has already gone out of country for holidays and won’t be back for a few weeks. I plan to get a PET scan to verify any new cancerous activity. Also, I might be taking chemo this week and adding cisplatin back into my chemo mix if PET scan is positive. Does this scenario make sense to anyone? My husband thinks maybe the radiation I received in October may have te ei ed scarring and that’s what the scan shows as subtle or vague. But the intense doesn’t in my mind validate his guess.
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Right back atcha @mnewland99! All the best!
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1 ReactionYes, it does get tiring what I say is steering the boat (I love sailing, but found it a bit exhausting on a small sailboat especially in a busy small harbor like Newport) for my pancreatic treatment and especially dealing with nurse practitioners that don’t have a clue what they are doing! What happened to all the PA’s?? Pain is gone especially after my chemo treatment yesterday and I have no understanding of the connection though it had been decreasing steadily each day but is totally gone after yesterday’s treatment. I imagine it was due to inflammation but really I dint know. Looking for yet again, another pancreatic oncologist at maybe city of hope in Irvine or another oncologist at Hoag who doesn’t use the nurse practitioner I had before. Hoping someone who just doesn’t rely on maintenance chemo for me and has my back for upcoming vaccines, etc. Also, Hoag is only one of 2 facilities in California that uses machinery for hypotripsy (spelling?). Best wishes in your trial and sorry we weren’t able to meet over coffee!
Had a thought about the pain disappearing; maybe it was the steroid!