I have to choose between Indiana vs. Ileal pouch surgery

Posted by adecrosta @adecrosta, Nov 2, 2021

I have serious radiation cystitis in my bladder and have to make a decision between having an Indiana procedure (bladder removal with a stoma and an internal urine pouch composed of a section of my intestine) or the ileum procedure (bladder removal with a stoma connected to an external Foley bag). Both are high risk surgeries, I am told, and both require considerable post-surgical habit changes. Does anyone have any experience with either of these procedures that can you help me make my choice between the two?

Interested in more discussions like this? Go to the Ostomy group.

Welcome, @adecrosta. It is always so hard to make these types of choices. I added your question to the Ostomy group (https://connect.mayoclinic.org/group/ostomy/) I did this so you can connect with others who may be able to provide their experiences like @pjebp @katydid77 @dideon @duckduck2020 @engelee

When will you have the procedure done?

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@colleenyoung

Welcome, @adecrosta. It is always so hard to make these types of choices. I added your question to the Ostomy group (https://connect.mayoclinic.org/group/ostomy/) I did this so you can connect with others who may be able to provide their experiences like @pjebp @katydid77 @dideon @duckduck2020 @engelee

When will you have the procedure done?

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I am considering having the procedure early next year, January or February. It's not an emergency, more an inevitability. Thanks for your assistance.

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