Increasing pain over time after Video Assisted Thoracic Surgery

Posted by vic83 @vic83, Oct 18, 2022

I am wondering if anyone has had a similar experience. I had VAT surgery end December 2021 with wedge resection in right upper lobe. They removed a 3.1cm cancer stage 1b. I was off pain meds in five days. For two + months I had usual nerve pain under right rib. But it did go away. Then weeks later I noticed a slight soreness when I took a deep breath. Slowly this increased. My Pulmonologist said there was nothing on the CT scan to indicate a problem. But the pain has slowly increased and now after 9+ months it is a pain behind the breast which I certainly notice when I take a deep breath. My last CT scan was end October, but Pulmonologist made no comments Three days ago I started to have a pain on the right side below rib cage(not related to breathing). I can only see my Primary Care Physician next week and nurse triage said go to Urgent care to get things started. I am leaving for Europe in three weeks for a month and I sure do not want to have problems. Does such pain just come with thoracic surgery ???

Interested in more discussions like this? Go to the Lung Cancer Support Group.

@tashaharley

I am wondering about a similar problem. I had robotic surgery in late August to remove a secondary lobe. A previous surgery was done about a year and a half ago for NSCLC Stage 2A. That surgery went well and I felt fine after a couple of weeks. The second surgery last August was done because there was a spot on a CT scan that turned out to be just an infection, not a recurrence. Again, I felt fine after a few weeks. But about two weeks ago (mid-December) I had a sudden onset of bad pain. It feels like the pain post-surgery in the general area of the incision but it's much worse. It occurs only with movement--picking up a box, reaching for something off a high shelf, bending over. Has anyone had this happen? I'm a little nervous that it could be some new cancer, although I do recognize that my fear that I broke a rib because I now have bone cancer is almost comically catastrophic thinking.

Jump to this post

Hi @tashaharley, welcome to Mayo Connect. It is best to consult with your doctor, but this pain could be caused by a lot of things other than recurrence of the cancer. My team has told me that if the pain is waking me up in the middle of the night, then I should be sure to let them know right away. I agree that any new pain can be alarming, as cancer patients we can be on edge, so it doesn't hurt to consult with your doctors. I have ongoing hip pain that can wake me up, and I've had many radiologists note "degenerative changes" on my reports; a nice way to say that I'm getting older but it's not cancer.
How long ago was your last scan? Do you have one coming up soon?

REPLY
@pb50

Have you brought this to attention of your surgeon or pulmonologist? It is likely not recurrence but everyone gets paid to help you answer that question. So it’s not asking a favor to engage them. I say ring them up!

Jump to this post

Thanks! You're right. That will be my next step.

REPLY
@tashaharley

I am wondering about a similar problem. I had robotic surgery in late August to remove a secondary lobe. A previous surgery was done about a year and a half ago for NSCLC Stage 2A. That surgery went well and I felt fine after a couple of weeks. The second surgery last August was done because there was a spot on a CT scan that turned out to be just an infection, not a recurrence. Again, I felt fine after a few weeks. But about two weeks ago (mid-December) I had a sudden onset of bad pain. It feels like the pain post-surgery in the general area of the incision but it's much worse. It occurs only with movement--picking up a box, reaching for something off a high shelf, bending over. Has anyone had this happen? I'm a little nervous that it could be some new cancer, although I do recognize that my fear that I broke a rib because I now have bone cancer is almost comically catastrophic thinking.

Jump to this post

Have you brought this to attention of your surgeon or pulmonologist? It is likely not recurrence but everyone gets paid to help you answer that question. So it’s not asking a favor to engage them. I say ring them up!

REPLY

I am wondering about a similar problem. I had robotic surgery in late August to remove a secondary lobe. A previous surgery was done about a year and a half ago for NSCLC Stage 2A. That surgery went well and I felt fine after a couple of weeks. The second surgery last August was done because there was a spot on a CT scan that turned out to be just an infection, not a recurrence. Again, I felt fine after a few weeks. But about two weeks ago (mid-December) I had a sudden onset of bad pain. It feels like the pain post-surgery in the general area of the incision but it's much worse. It occurs only with movement--picking up a box, reaching for something off a high shelf, bending over. Has anyone had this happen? I'm a little nervous that it could be some new cancer, although I do recognize that my fear that I broke a rib because I now have bone cancer is almost comically catastrophic thinking.

REPLY
@vic83

I would add that 1) My first VAT was not very painful, and I was off all pain meds in 5 days. The numbness below the breast lasted 4 months and then went away. It felt like I was wearing a belt. 2) My second VAT was a lot more painful (cracked rib). And I had prickly nerve pain. They gave me Gabapentin and that helped the pain a lot. It is still numb feeling (7 months out) but that doesn't bother me. Still feels like I have a belt around me. 3) I have somewhat more shortness of breath, and my chest feels stiff when I take a deep breath while standing, and sometimes a bit sore. I had the inflammation from radiation treatment so that impacts it.

Jump to this post

Yea me too. I went off meds the day before I left the hospital. I didn’t even fill the script for Oxy. I’m just averse To narcotics. And gabapentin gave me Psychotic dreams. I did charm them into a replacement muscle relaxer for flexoril. That helped me sleep.

And yes, I’ve described it as a belt, or Vice grip, Or paralyzed diaphragm. I think it’s easing ever so slightly .. can’t be sure it isn’t wishful thinking. My Rheumy also gave me Colchicine which had maybe an effect
Similar to Ibuprofen (which I cannot take) but too dangerous for mediocre benefit.

REPLY
@geraldkl

I has the same experience. My surgery was on July 20th and I still have rib pain. Much better than a couple of months ago. I only wish my surgeon would have told me that this pain was probable so that I would have been mentally prepared. I thought something went wrong and then, by reading comments here, I realized that it is very common.

Jump to this post

I quite agree. I was not prepared
For sustained pain and had
Moved to a new doc so had
CT, Ultrasound, and X-Ray looking for fluid or other explanations.
But then I had multiple reasons to be frustrated with my surgeon. 🙄

REPLY
@pb50

To hear someone else describe the pattern I experience of immediate post surgical pain, then predictable nerve disruption pain, then this long-lasting rib/diaphragm painful restriction with deeper breathing, to be eliminated temporarily by Prednisone… well that was hopeful because it’s not unique to me.

Jump to this post

I would add that 1) My first VAT was not very painful, and I was off all pain meds in 5 days. The numbness below the breast lasted 4 months and then went away. It felt like I was wearing a belt. 2) My second VAT was a lot more painful (cracked rib). And I had prickly nerve pain. They gave me Gabapentin and that helped the pain a lot. It is still numb feeling (7 months out) but that doesn't bother me. Still feels like I have a belt around me. 3) I have somewhat more shortness of breath, and my chest feels stiff when I take a deep breath while standing, and sometimes a bit sore. I had the inflammation from radiation treatment so that impacts it.

REPLY
@pb50

Your post has been reassuring to me. I had VATS in May for left lower lobectomy to remove a 1.5cm Adenocarcinoma. I did not even fill my script for pain pills but what I have had is rib and diaphragm pain consistently for 7 months now - EXCEPT when my Rheumatologist prescribed 20mg prednisone for an RA flare. My rib/diaphragm pain wasn’t just better - it was gone!! For the time I was on 20 mg and then 15 as I started tapering it was awesome. But when I tapered to 10 the benefit vaporized. I’ve said I felt like Cinderella.

So I know it is inflammation - which I didn’t know before. But I can’t live on Prednisone. I’ve had CTs , X-rays and nothing provides answers - so I assume it’s just stubborn inflammation.

Did your rib pain persist after the prednisone or did it resolve over time?

Jump to this post

Most of my left lung was removed in September using VAT and now I eat vitamin B12 gummies, lot's of them, 12,000 mcg over the course of a day. I am increasing my red blood cell count and thereby lowering my inflammation level and pain levels. I also take some copper and B9, but I think it is the B12 that does the most to increase my red blood cells. The B12 also stops the diarrhea I had from the immuno drugs they pumped into me a few months before my lung surgery. The B12 is also helping with the arthritis in my hands. Cherry flavored gummies are my favorite.

REPLY
@pb50

To hear someone else describe the pattern I experience of immediate post surgical pain, then predictable nerve disruption pain, then this long-lasting rib/diaphragm painful restriction with deeper breathing, to be eliminated temporarily by Prednisone… well that was hopeful because it’s not unique to me.

Jump to this post

I has the same experience. My surgery was on July 20th and I still have rib pain. Much better than a couple of months ago. I only wish my surgeon would have told me that this pain was probable so that I would have been mentally prepared. I thought something went wrong and then, by reading comments here, I realized that it is very common.

REPLY
@vic83

That was referring to pain after my first VAT surgery (RUL). The surgery was a walk in the park and needed little pain meds...but months later I developed pleurisy and related pain which is painful. The stuff they premedicated me for to do a CT scan with contrast (I get hives from contrast) was described as "industrial strength" by my Rheumatologist and I felt great after...then it ended.
With VAT surgery they go in between the ribs and disturb nerves and things. My Mayo surgeon says nerve problem can last up to a year or even sometimes be permanent. Mine all went away with first VAT surgery RUL but second one LUL had more problems - fractured rib for one. And it still is numb on that side (now 7 months).
Now I am taking Prednizone for radiation-pneumonitis and now tapering and hoping the EXTREME shortness of breath does not return.

Jump to this post

To hear someone else describe the pattern I experience of immediate post surgical pain, then predictable nerve disruption pain, then this long-lasting rib/diaphragm painful restriction with deeper breathing, to be eliminated temporarily by Prednisone… well that was hopeful because it’s not unique to me.

REPLY
Please sign in or register to post a reply.