Incidental Adrenal Mass on CT

Posted by mcmak444 @mcmak444, Mar 3 3:23pm

They found an incidental 2.6cm mass on my right adrenal gland via CT in 2022 (not my PCP was in an accident on vacation). My PCP ordered an MRI but no other tests and It came back saying no mass seen. I just accepted it and moved on (I’m not good advocate for myself) . Since then I have developed progressive symptoms which has only resulted in me being bounced to different specialists for symptom treatment. (Not an endocrinologist). I had to take a leave from work because the symptoms have gotten so progressively debilitating, I can barely function. I’ve questioned my PCP and she just says we don’t know we’ll figure it out. Now doing my own research regarding adrenal masses, I have every symptom related to Pheochromocytomas. I can’t shut my nervous system down. I can’t eat my blood pressure is out of control. I feel like I am dying and no one is listening. I do have an appointment on Wednesday with my doctor again and I am bringing literature and demanding that they do a CT which is the gold standard and additional lab work that would indicate adrenal overdrive . I’m so frustrated. I feel like no one’s listening to me. There’s something wrong with my body. I’m tired of feeling like it’s in my head. Sorry for the long message thanks for listening. I enjoy the support group because I can read helpful information. Thank you. 😊

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I had a Pheochromocytoma They did surgery took my Adrenal gland out I am doing good now Have you had blood work and a 24 hour urine test ?

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I’m waiting on the results but based on CT but preliminarily, the doctor is suggesting surgery. My symptoms are bad and I tend to be too tough. Im curious about side effects post surgery.

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There is an entire thread on Mayo forum re pseudo-pheo, aka paroxysmal hypertension. One component of treatment is anti-anxiety medication and/or anti-depressant which helps treat anxiety. It has been a game changer for me.
Pseudo-pheo and pheo are different, of course, but the symptoms are identical. I'm suggesting that during this difficult time you may be helped by anxiety meds. The idea that your mind and body are not intricately connected is not really how it works, as I am finding out.

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@moritzm

There is an entire thread on Mayo forum re pseudo-pheo, aka paroxysmal hypertension. One component of treatment is anti-anxiety medication and/or anti-depressant which helps treat anxiety. It has been a game changer for me.
Pseudo-pheo and pheo are different, of course, but the symptoms are identical. I'm suggesting that during this difficult time you may be helped by anxiety meds. The idea that your mind and body are not intricately connected is not really how it works, as I am finding out.

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For those interested, here is the discussion that @moritzm refers to:
- Has anyone been diagnosed with pseudopheochromocytoma https://connect.mayoclinic.org/discussion/has-anyone-been-diagnosed-with-pseudopheochromocytoma/

There are also discussions about pheochromocytoma
- Pheochromocytoma: Anyone being treated for an adrenal mass? https://connect.mayoclinic.org/discussion/pheochromocytoma/
See all: https://connect.mayoclinic.org/search/discussions/?search=pheochromocytoma

@moritzm, I'm encouraged to hear that anxiety meds are working for you and you manage paroxysmal hypertension.

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@mcmak444, how did your appointment go? Any further investigations? How are you doing?

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