IMD

I was first dx with RA 30 years ago. I opted not to take the meds offered. About 10 years ago I begin noticing leg and arm weakness, which was finally dx'd as IMD 3 years ago. In that time I have gone from a fair amount of independence to a walker and wheelchair. Am very interested in input from others for this horrible disease. All I here from my doctors is "there is no cure, there is no treatment". Apparently, there is very little research going on, as it is very rare, only 8 out of one million. (not worth the money to put into it for so few, I guess)