I’m reporting back as to my having a kidney stone on Tymlos.

Posted by stress101 @stress101, Jul 11 5:48pm

I am at a crossroads of feeling tossed to the sides by my endocrinologist. As in a previous post, I was told maybe I shouldn’t be on Tymlos having a kidney stone, So I informed my endocrinologist in a kind way what information she had about this, Everything is communicated through portal and so her replies are always short and abrupt leaving me with so many questions she didn’t address.
Her reply was “Stop taking Tymlos until kidney stone issue is resolved”.
Then I had to ask, Do I need another kidney ultrasound to see if stone is still present and if so can she order that. All I heard next was from an imaging center making me an appointment. So, went and stone still there, grew some but not in a problem area which I learned that from the test results. Next thing I hear is the endo writes, that stone is still present and need to see urologist. Then I have to ask if a urologist is one who is knowledgeable of Tymlos and its effects which then she andered they will have to determine if they think monitoring the stone is ok to be on Tymlos. I also asked her what my other options could be e with no reply.
So, I am feeling my endo is wanting me to move on and not be my DR and truthfully so am I if I all I get are short incomplete answers. I am so depressed over all this and not feeling anyone wants to help an 82 year old. I just want to throw my hands up. So, guess now I will go see a urologist and go back to zero. I am still battling with so much back pain too as I struggle through PT. So far after two months, no change.

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

You need an endo with a better bedside manner. Seriously, I would consider finding a more supportive one.

I've read that in cases like this, the patient may be advised to stop taking calcium supplements for a while. A urologist who treats many seniors may have seen this before.

REPLY
Profile picture for njx58 @njx58

You need an endo with a better bedside manner. Seriously, I would consider finding a more supportive one.

I've read that in cases like this, the patient may be advised to stop taking calcium supplements for a while. A urologist who treats many seniors may have seen this before.

Jump to this post

Thank you and I agree with you. Hoping my referral to one will be knowledgeable.

REPLY

Over my life span. I have had several kidney stone attacks. About two years ago I developed gout. My family physician requested blood work to check my uric acid. Blood work results showed very high uric acid. My doctor said he would prescribe allopurinol, but wanted to try something different first. He told me to buy "Tart Cherry" and "Gout Clear" supplement vitamins. He also said drink a glass of lemonade each day. After three months he ordered another blood test. Uric acid was high (6.7) but in the normal range. The range is 3.4 to 7 for men. After a year my Uric acid count is 5.8. My doctor said supplements do not help everyone.
End Result: I have blood work every six months and keep in the 5.0 to 5.3 range. No gout nor kidney stones and no problems with the kidneys.

REPLY
Please sign in or register to post a reply.