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kerrilynn1

Im exhausted, the pain is too much. I keep trying to find

Posted by @kerrilynn1 in Just Want to Talk, Apr 27, 2012

Im exhausted, the pain is too much. I keep trying to find a way to get through one more day, but I am running out of hope & medication options. I don't think the remicade infusions are helping. The Dr told me it would take 3 months of treatment for it to work, Monday will be 3 months. Im still in bed on pain meds. I still only get 2 or 3 days a month when I can get dressed & leave the house. I've failed on 3 meds since September. Maybe the Dr is wrong, maybe it isn't seronegative spondyloarthropy/ankylosing spondylitis. Maybe the pain is neurological, or the chronic fatigue syndrome & fibromyalgia are constantly flaring up. I don't know what to do. Everytime I get a new diagnosis, new medication, surgery, physical therapy, counselling, pain management clinic I try so hard. I do everything I am told to do. Im positive, I have hope & then nothing gets better. Im 46 years old. I've been in pain since 1996. I can't be disappointed again. I don't want more Drs, more treatment options. I can't do it anymore. Its been 12 years maybe its time to just accept the pain & the life its taken from me.

piglit

Posted by @piglit, Apr 27, 2012

Hi sweetie, So sorry that you are having such a rough time at the moment.Maybe you could get a further opinion from another specialist. If the pain is to unbearable my sweet which it sounds to me that it is.It might be a good idea to call someone if you are alone and get them to come over and maybe take you into hospital. In hospital they can give you different pain medications sometimes stronger to alleviate the pain and monitor how you are going. This is what I would do , as I work in the field of caring for people and have had them admitted myself into hospital the options are there for you. In the meantime my sweet try some deep breathing this may help to settle things down.listen to calming music and if you can place a warm wheat bag on the pain as this may also help. Talk care my sweetie. Have also left a message for you to reply to Big hugs and love Anniexo

roxie43

Posted by @roxie43, Apr 28, 2012

I'm sorry too. We are here for you if you need to chat.
Take care
Rox

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