I'm concerned I won't make it through the Temodar course

Posted by raphaela2025 @raphaela2025, 3 days ago

I'm at Mayo now and my neuro-oncologist has me beginning the chemo pills (Temodar) after my radiation treatment is over on August 4th. I'd stay here for it, but I'd need to have a caretaker with me if I wanted to stay in the Hope Lodge or who they partner with if there's room. I'm already vomiting from the radiation treatment. When I had to have an infusion for hydration, the nurse told me that it's really bad with chemo. I'm afraid I won't be able to get through it. I have Glioblastoma Multiforme, so I wonder if I should even put myself through it. I'll certainly try. I'm thinking about checking out if I can be in a rehab while I'm taking it, so there are people around 24/7. Has anyone done anything like that?

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Good that you will try the chemotherapy. My husband with the same diagnosis as yours was on TMZ for a year with no side effects except being tired. Of course every person is different. Good luck and blessings to you.

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It's worth trying. My husband has had two surgeries, radiation and chemo. He is now out 28 months from the first surgery which is longer than average. I'm grateful to still have him with me and I don't know how much longer he will be with me but every day is a blessing for both him and me. It's a rough road so I hope you have friends and family to give you emotional support. It's good to get on this support group to know what others are feeling. Prayers for you. I know everyone in this group or here for you in any way we can.

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Stay positive, no matter what! Don't let the medical field or what you are going through control your thoughts and emotions. Read up on Glioblastoma Multiforme but If you can, don't follow-up on your condition, especially if it is all negative. Find happiness in everything you can and will continue to do, even during your treatment....it works!
God Bless!

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I’m surprised the nurse was so negative about Temodar. My husband took 10 courses of it and tolerated it without incident.

It is critical to take the anti nausea medication as instructed before you take the chemo pills. My husband had zero nausea, ever. And, it worked for a good time.

Good luck!🍀

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I did 6 5-day cycles of Temodar, took a zofran an hour before. Never felt nauseous, never missed a day of work.

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