1. < Blood Cancers & Disorders

I'm about to begin treatments with Vidaza, what should I know?

Posted by jeffreykassover1 @jeffreykassover1, Apr 2 7:09pm

I'm about to begin treatments with Vidaza. Does anyone have any experiences they can share about their success, or what I should be prepared for?

Interested in more discussions like this? Go to the Blood Cancers & Disorders Support Group.

bettersleep68 | @bettersleep68 | Apr 4 5:34am
In reply to @kva111 "I have MDS IB2. My blast count was 10% when diagnosed. After 3 rounds of vidaza..." + (show)
@kva111

I have MDS IB2. My blast count was 10% when diagnosed. After 3 rounds of vidaza with venaclax my blast count was 2%. I am continuing my long term chemotherapy on these two medications. You may have some low white cell counts along the way. Your doctor should explain this to you.

Jump to this post

What did they do for your low wbc..mine are 2.6...I am worried

REPLY
2 replies
shot | @shot | Apr 3 2:40pm

My first shots resulted in severe vomiting and a trip to the er.
I was told this is unheard of .
Also, read that Vidaza is only effective for 30%to 40% who start it.
I have lost interest.

REPLY
1 reply
kva111 | @kva111 | Apr 3 10:41am

I have MDS IB2. My blast count was 10% when diagnosed. After 3 rounds of vidaza with venaclax my blast count was 2%. I am continuing my long term chemotherapy on these two medications. You may have some low white cell counts along the way. Your doctor should explain this to you.

REPLY
1 reply
dax1million | @dax1million | Apr 3 12:35am

My husband just finished his first round of Vidaza, 7 days on and in 1 month again treatment. He went thru the treatment very well, real fatigued some days. He received the treatment by an injection in his stomach, his only real complaint was it really irritated at injection site. He has a pikline and the next treatment will be thru the pikline. Good luck to you, you’ll do great.

REPLY
View MoreView Less
Please sign in or register to post a reply.