I'm about to begin treatments with Vidaza, what should I know?

Posted by jeffreykassover1 @jeffreykassover1, Apr 2, 2025

I'm about to begin treatments with Vidaza. Does anyone have any experiences they can share about their success, or what I should be prepared for?

Interested in more discussions like this? Go to the Blood Cancers & Disorders Support Group.

dax1million | @dax1million | Apr 24, 2025

In reply to @jeffreykassover1 "Hemoglobin at 7.2 down from 8.5. Hopeful." + (show)

It will be back up, its all a part the treatment. Just know it is working.

usdanma | @usdanma | Apr 23, 2025

In reply to @dax1million "My husband just finished his first round of Vidaza, 7 days on and in 1 month..." + (show)

A PICC line, or peripherally inserted central catheter, is a thin, flexible tube used for long-term intravenous access, typically in the upper arm, with the tip resting in a major vein near the heart. It's used for administering medications, fluids, blood transfusions, and taking blood samples, reducing the need for repeated needle sticks.

I have only had injections into my stomach fat.

jeffreykassover1 | @jeffreykassover1 | Apr 22, 2025

In reply to @bettersleep68 "What numbers labs.." + (show)

Hemoglobin at 7.2 down from 8.5. Hopeful.

dax1million | @dax1million | Apr 22, 2025

In reply to @bettersleep68 "What numbers labs.." + (show)

My husband finishes his 2nd round of vidaza tomorrow, our cancer specialist at Levine cancer, Charlotte explained that’s the way it would go. Up and down ,so we take it that it most be working. Hang in there and trust your doctors and God.

bettersleep68 | @bettersleep68 | Apr 20, 2025

In reply to @jeffreykassover1 "Now the numbers are back down, just completed my 1st round and still hopeful. What's next?" + (show)

What numbers labs..

jeffreykassover1 | @jeffreykassover1 | Apr 19, 2025

In reply to @colleenyoung "Fantastic news, Jeffrey." + (show)

Now the numbers are back down, just completed my 1st round and still hopeful. What's next?

Colleen Young, Connect Director | @colleenyoung | Apr 18, 2025

In reply to @jeffreykassover1 "While it's only been a few days since I started treatment, my numbers seem to be..." + (show)

Fantastic news, Jeffrey.

jeffreykassover1 | @jeffreykassover1 | Apr 10, 2025

In reply to @colleenyoung "@jeffreykassover1, you might also be interested in these related discussions about azacitidine (Vidaza): https://connect.mayoclinic.org/group/blood-cancers-disorders/?search=Vidaza&index=discussions How are..." + (show)

While it's only been a few days since I started treatment, my numbers seem to be improving. The Dr. and I are both optimistic that it will continue. So far, no adverse effects. Happy!

Colleen Young, Connect Director | @colleenyoung | Apr 10, 2025

@jeffreykassover1, you might also be interested in these related discussions about azacitidine (Vidaza):
https://connect.mayoclinic.org/group/blood-cancers-disorders/
How are you doing on treatment with azacitidine (Vidaza)?

shot | @shot | Apr 5, 2025

In reply to @loribmt "Welcome to Connect @shot. You sure got off to a rocky start with your chemo. I’m..." + (show)

They gave me nausea medication that I took initially.
Obviously did not help.
Diagnosis is myelodysplasia and Myelofibrosis
Dr. has recommended prenausea treatment prior to another attempt.
Is it possible to get an overdose of Vidaza ?

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