Share this:
cindi819
@cindi819

Posts: 8
Joined: Apr 08, 2016

I'm a very strange diabetic and a miracle as well....long story short

Posted by @cindi819, Apr 8, 2016

I’m a very strange diabetic and a miracle as well….long story short, never had issues until found in a coma with sugar 1,555…!(yes, that’s the correct number) I almost died.
At first they had me on Lantus and fast acting insulin before meals, after two weeks in the hospital after coming out of the coma.
I developed heart issues and for some reason I developed Hypoglycemia and they d/cd all insulin.
I went from 18mths of treatment and then I was normal. Then for no reason the hypo started. That went on for years. Now, I fight highs and lows. They’ve tried Metformin and some days it works, others I battle lows to where I’m eating and drinking to just keep my sugar up.
Right now I’m battling lows, it’ll go up to 200 because I’m literally eating raw sugar to get it to do that. It drops 70-80 points with five minutes. (Which affects my heart arrhythmia and it’s just a vicious cycle!)
Does anyone have these issues? If so, do you have any advice on how to control my lows?
Thank you for listening…

REPLY

@cindi819, I can only imagine how frightening that was, but I’m glad you and your doctors were able to bring your sugar level down. I found some information on managing hypoglycemia that I think you may find helpful (http://www.mayoclinic.org/diseases-conditions/diabetic-hypoglycemia/basics/treatment/con-20034680). It sounds like you have been battling highs and lows for awhile, but this may offer some alternate advice.

I’m also tagging @dawn1952, who wrote about low blood sugar levels. She is looking for advice on how to control blood sugar levels, and I thought you two might be able to share what has working vs. what is not working in regards to managing your lows.

Liked by cindi819

@alysebrunella

@cindi819, I can only imagine how frightening that was, but I’m glad you and your doctors were able to bring your sugar level down. I found some information on managing hypoglycemia that I think you may find helpful (http://www.mayoclinic.org/diseases-conditions/diabetic-hypoglycemia/basics/treatment/con-20034680). It sounds like you have been battling highs and lows for awhile, but this may offer some alternate advice.

I’m also tagging @dawn1952, who wrote about low blood sugar levels. She is looking for advice on how to control blood sugar levels, and I thought you two might be able to share what has working vs. what is not working in regards to managing your lows.

Jump to this post

Thank you so much!

omg i know exactly what your talking about ive had my d1 since i was 2 and very brittle i battle highs an lows on a daily an also been in comma’s for both been trough transplant that rejected been on insulin pump oh yeah im 28
like i said its battle every day

Liked by Ali Skahan

@spinxs1987

omg i know exactly what your talking about ive had my d1 since i was 2 and very brittle i battle highs an lows on a daily an also been in comma’s for both been trough transplant that rejected been on insulin pump oh yeah im 28
like i said its battle every day

Jump to this post

That’s got to be hard being 28 and already been through so much! I’ve heard the pump works for stabilizing us, I’m just worried about getting one.
Do they hurt?

@spinxs1987

omg i know exactly what your talking about ive had my d1 since i was 2 and very brittle i battle highs an lows on a daily an also been in comma’s for both been trough transplant that rejected been on insulin pump oh yeah im 28
like i said its battle every day

Jump to this post

thats the thing about d1 as i refer type 1 diabetics we are all very different body wise and even the way our bodies sighs for high an low blood sugars that i try very hard to stress to the doctors we are not all the same .

for the pump it depends on where you yourself know when you do injections where it hurts the most and where it hurts the less each of our nerves are very different.
so because really who knows our body better then we do when it comes to these things that. what i did to choose the sites i would use for the pump that way you barely feel it going in and dont even know its there while it in place so every time you have to change sites lol play doctor with yourself poke an prod your skin on your belly legs arms some use lower back some use their chest
if your unsure talk to your doc i know i do

p.s love talking to you hope it continues

@spinxs1987 and @cindi819. Just checking in. How are you doing?

That’s really hard and i can understand what you are saying very well.

the strange thing for me, i was 1.5 and walking, just not feeling well

@colleenyoung

@spinxs1987 and @cindi819. Just checking in. How are you doing?

Jump to this post

Been rough lately because I’ve been sick. That’s very very sweet and kind of you to check on me. Thank you!
It’s a battle trying to find normal again; I’ve finally decided to adjust my ideal normal and find my “daily normal”.
Cindi

@iman_im

That’s really hard and i can understand what you are saying very well.

the strange thing for me, i was 1.5 and walking, just not feeling well

Jump to this post

Are you feeling better @iman_mn

Was diagnosed 60 years ago. Prior to going on a pump in 1985 my blood sugars were up and down like a roller coaster. Pump therapy helped to stabilize my blood sugar levels. Also recently added a Dexcom CGM to my therapy which helped to further stabilize levels and alerted me during the night if I went low. Also saw a significant drop in my A1C to the low 6’s

Please login or register to post a reply.