If you're living without a hip like me, please reach out to me.....

Posted by Anonymous122054 @anonymous122054, Nov 28, 2017

Hello. I’m a 52 year old Female living in Seattle Wa. Last Sept I had a THR which was going well at first but at 3 weeks I dislocated it. E.R. popped it back in and 2 weeks later it dislocated again. I had to wait until the second week of Dec. for the revision. Because On Dec 5th I had breast cancer surgery. (when it rains, it pours) and Dec 12th I had the revision. Dec 19th I had a fever of 104 and went to the ER. They sent me to the hospital where I had the hip surgery and 12 hours later was told I had an infection and that the hip needed to come out. They put in a spacer and a new piece in my femur and told me when the infection was gone that they would put in a new THR. I was in the hospital the week of Christmas and had to do the IV infusions for 7weeks. I lived alone except for a 1 1/2 y.o. boxer dog who I had rescued between dislocations. I already have severe depression and anxiety along with PTSD so this whole ordeal was more than I could handle. My surgeon (I found out later) was a huge ass who didn’t give a crap about me (or anyone who wasn’t him) and lied to me about several things, including trying to convince me that I could live a normal life with the temporary hip. I knew that was impossible because the pain from the spacer was horrible and later found out that the pain was caused by the spacer shifting because he didn’t use enough cement to hold it in place. I wanted a new surgeon and had to fight with his office to get someone else to replace the hip. I met with the new surgeon (who is great) the day they were pulling out the PICC line and we talked about the following month of checking my blood and my hip fluid before proceeding with the new hip.The PICC line came out and 6 days later I was back at the ER septic and close to death because the staph infection wasn’t gone. The next time I saw my new surgeon he was leaning over me in the ER saying ” I’m sorry but I have to remove the whole thing and after that you’re done. He cut me open and I had a pus pocket the size of a football that exploded when he cut me. I spent another week in the hospital and had another 7 weeks of the PICC line and IV infusions. I spoke to the surgeon while still in the hospital and he said he could “attempt” a 2 stage surgery when the staph was gone. I opted out. I felt that 4 surgeries was way too much for me (5 if you count cancer). I had to move from where I was living in 30 days and am currently renting a room 50 miles from Seattle where I know no one. I still have the dog (she’s the only reason I made it this far). and with the rent in Seattle going through the roof, I can’t even afford a room for rent so I’m trying to find a live-in caregiver position that I could trade for rent. It’s been a really long year and I’m still trying to comprehend the fact that I’ll never be the same. I was living on a horse farm before the surgery, trading work for an apt. on the farm. I loved it more than I ever thought and was hoping to get this hip done and find another farm to live on. That will never happen now because I can’t risk being knocked over. I had a house cleaning business (no employees, just me) for 25 years and I can’t do that anymore either. I’m going crazy with boredom and don’t know what to do with myself. I’m still on painkillers twice daily and to keep the pain somewhat at bay can’t drive too much or stand, sit, walk or lay down for too long. I would love to hear from people who are also living without a hip to share thoughts or ideas about a common situation. No one I have spoken to, including surgeons, physical therapists and the like knows anyone living without a hip. My friend found this site for me. Please reach out to me. I think it would help me to know I’m not the only one. Thank you, Robin

Hello, my name is Michael (60 yrs old) and I am in a similar situation. They have recently took out my hip joint and I am trying to learn hoe to walk without it. It seems difficult as hell. my story is a little similar. came into the VA hospital in Houston Tx. with osteoarthritis and advanced d-generated hips.
3 surgeries 4 dislocated, then caught a Staph infection so they did a fourth surgery except they left the stem in and put another ball and cup liner in. and that one gave me big problems so I complained and the doctor from the antibiotics dept. were supportive because the antibiotics couldn’t rid the infection, so they went in again and took it all (equipment) out. Put the spacer etc. So they tell me. but an intern or Doctor told me they took my some of my muscle and balled it up and stuck it in the joint cup. The top of my left thigh fattens when I do PT. (presently still in the hospital) and the fatness only goes down halfway. My right hip needs replacing too but I doubt that will happen soon. I have been told conflicting stories and still trying to find out more information; for Non Service connected disability, will I get another shot at another hip replacement, when could it be and what about my right hip and knee. A total of five surgeries since July 7, 2017.. Anyway, this is my first time researching this matter and I used to be work living on farm/ranches England horse ridding and showing. that was 25+ yrs. ago so I understand your feelings to get back into that environment. Between you and me, your the more experienced in this matter.
I’m presently trying to get a rating on this disability plus my lower back and knees. in the first 3 surgeries they made my left leg 2″ taller, in the last surgery ( Dec. 1, 2017 and 5th surgery since July 7, 2017)after taking the hip joint equipment out and cutting some of my femur bone off. I’m still not strong enough to walk far without my arms giving out., so I’m still using a wheel chair. I will be doing searches on the web to hear other peoples stories and find out how life is, say a year latter or more. I will share what I find with you if you like My prayers are with you. Stay strong and don’t lose hope..

@michaeljb

Hello, my name is Michael (60 yrs old) and I am in a similar situation. They have recently took out my hip joint and I am trying to learn hoe to walk without it. It seems difficult as hell. my story is a little similar. came into the VA hospital in Houston Tx. with osteoarthritis and advanced d-generated hips.
3 surgeries 4 dislocated, then caught a Staph infection so they did a fourth surgery except they left the stem in and put another ball and cup liner in. and that one gave me big problems so I complained and the doctor from the antibiotics dept. were supportive because the antibiotics couldn’t rid the infection, so they went in again and took it all (equipment) out. Put the spacer etc. So they tell me. but an intern or Doctor told me they took my some of my muscle and balled it up and stuck it in the joint cup. The top of my left thigh fattens when I do PT. (presently still in the hospital) and the fatness only goes down halfway. My right hip needs replacing too but I doubt that will happen soon. I have been told conflicting stories and still trying to find out more information; for Non Service connected disability, will I get another shot at another hip replacement, when could it be and what about my right hip and knee. A total of five surgeries since July 7, 2017.. Anyway, this is my first time researching this matter and I used to be work living on farm/ranches England horse ridding and showing. that was 25+ yrs. ago so I understand your feelings to get back into that environment. Between you and me, your the more experienced in this matter.
I’m presently trying to get a rating on this disability plus my lower back and knees. in the first 3 surgeries they made my left leg 2″ taller, in the last surgery ( Dec. 1, 2017 and 5th surgery since July 7, 2017)after taking the hip joint equipment out and cutting some of my femur bone off. I’m still not strong enough to walk far without my arms giving out., so I’m still using a wheel chair. I will be doing searches on the web to hear other peoples stories and find out how life is, say a year latter or more. I will share what I find with you if you like My prayers are with you. Stay strong and don’t lose hope..

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Hello, it’s Robin (froggyone) I just re-read your message and I’m trying to figure out what to say. First off, I hope you’re out of the hospital and are on the mend. I can’t give you medical advice on whether you should have more surgeries. I’m the wrong person to ask about that because I’m very angry about the way things happened to me over the course of 4 surgeries and 2 staph infections. It’s crazy to me to read about people that have had 6,7 or 8 surgeries and 6 or 8 staph infections because I had 2 of them and I don’t want to ever have another procedure done, no matter what it’s for, because I’m far too scared. I can’t go through that again ever. I’m also extremely bitter and sad because I’ll never be able to work on a horse farm again. I was really in my element there and I loved it so much. I also had a housecleaning/organizing/packing,moving business for 25 year and I’m used to being strong and mobile. I loved all that work too. I can’t even fathom what I’m going to do for the rest of my life. I’m bored stiff. I am very determined to get another job, since I love animals so much it will probably be with animals. I never had to use a wheel chair. In fact, within 2 days of the final hip removal I was up and chomping at the bit to get moving. I even practiced on the stairs! My surgeon was blown away. Do you think you’ll have to stay in a wheelchair? I hope eventually you are able to use a walker, cane or even crutches. I have some good advice for you for when you start using a walker. Get back to me when you have a chance and let me know how you’re doing and when you get to go home. I’ll give you any pointers you may need. Or just listen to your worries or concerns. Take care, Robin

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