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If you had radiation, when did you start hormone therapy?

Posted by brighterdays @brighterdays, Aug 9, 2023

Did you start during radiation? Right after? Or waited until you healed?

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mvg | @mvg | Aug 13, 2023
In reply to @californiazebra "@brighterdays I started on Letrozole 2 weeks after I finished my final, 37th, radiation treatment. I..." + (show)
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@brighterdays
I started on Letrozole 2 weeks after I finished my final, 37th, radiation treatment. I remember my oncologist saying let's give your body a break before we start the meds then surprised when just two weeks after radiation the break was over.

At the end of my radiation treatment I was so fatigued I could hardly walk across the room and my skin was pretty thrashed - open wounds 8" x 12" area at that point using silvadene burn cream. Although I had improved in the two weeks before I started Letrozole, I remember my skin was not healed yet. I can't remember exactly how I felt after the two week break as that was 2/2021. Then I started Kisqali one week after the Letrozole. My oncologist gave me both meds at once, but I separated the meds by a week so I would know if one med caused any serious reactions. I've been taking both meds for 2.5 years now and plan to continue as long as they keeping working. Best of luck with the meds.

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I started LETROZOL 4 weeks after final radiation. After a year I got the okay to see how I’d feel without it for 3 weeks. Watching for fatigue, trigger thumbs, achy teeth and joints. But no significant difference so I’m back on it.
Mg

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dinod1923 | @dinod1923 | Aug 13, 2023
In reply to @sugarbear0 "Pretty sure taking HRT for too long had something to do w/ cancer—& mine is estrogen..." + (show)
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Pretty sure taking HRT for too long had something to do w/ cancer—& mine is estrogen &progesterone +, just like my HRT.

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Same!

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dyevooshka | @dyevooshka | Aug 14, 2023

I started the following week- 9 days later.

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chickenmom10 | @chickenmom10 | Aug 14, 2023
In reply to @mossa "Reading some info from NIH that delay for starting AI’s is so that cellular effects from..." + (show)
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Reading some info from NIH that delay for starting AI’s is so that cellular effects from radiation won’t be diminished. This information from Dr Google, not my oncologist.

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I would rely on national institute of health /national cancer institute website. I used to work there, the peer review scientist are awesome. They do a lot of trials and come up with best practices. However, I will tell you that my oncologist did her internship at NIH. How awesome is that.

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teenadann | @teenadann | Mar 23 1:20pm
In reply to @raebaby "I decided not to take it at all. That was around 2 years ago." + (show)
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I decided not to take it at all. That was around 2 years ago.

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@raebaby I am looking at not taking them too. It's been three years since this post. How are you?

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raebaby | @raebaby | Mar 23 2:32pm

I am dong great. will be having my 6 month check up soon. They examine my blood work that has shown no signs of cancer. I am 84 now and still traveling around by airplane by myself and having lots of fun!

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wildapple50 | @wildapple50 | Mar 24 9:30am
In reply to @dinod1923 "Same!" + (show)
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Same!

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@dinod1923

No. How can something your body makes cause cancer? Just because estrogen can cause growth doesn't mean it was the cause. If it was cancer would be more prevalent in young people.

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wr61 | @wr61 | Mar 24 2:10pm
In reply to @raebaby "I decided not to take it at all. That was around 2 years ago." + (show)
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I decided not to take it at all. That was around 2 years ago.

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@raebaby I'm 83 and trying to make that decision now. How is it going?

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raebaby | @raebaby | Mar 24 2:49pm
In reply to @wr61 "@raebaby I'm 83 and trying to make that decision now. How is it going?" + (show)
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@raebaby I'm 83 and trying to make that decision now. How is it going?

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@wr61 I'm doing well. have no signs of a return of the tumor at this point. My heart is very healthy. My bones are okay and I dont have the depression that anti estrogens causeed me.

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wr61 | @wr61 | Mar 24 3:40pm
In reply to @raebaby "@wr61 I'm doing well. have no signs of a return of the tumor at this point...." + (show)
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@wr61 I'm doing well. have no signs of a return of the tumor at this point. My heart is very healthy. My bones are okay and I dont have the depression that anti estrogens causeed me.

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@raebaby Thank you for the reply. Glad you are doing well. 16 + 4 boost complete , partial mastectomy ,clear margins. Going to onc PA next week who I think will try to push the AI.

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