Immune Thrombocytopenia Purpura (ITP): What helps?

Posted by naiviv @naiviv, Sep 2, 2022

Has anyone been diagnosed with ITP? Does anyone take supplements for ITP? Food to eat to increase platelets?

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@jimmyb63

Just diagnosed with ITP, platelets ranging from 2000-5000. So far IGIV, steroids and Rituxan has not helped. Just diagnosed 3 weeks ago. Anyone else with this issue and was there anything that helped get the platelets up? Bone marrow biopsy has ruled out any type of cancer. Any insight sure would be appreciated.

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Jimmy, it can take a while for steroids or Rituxan to work, generally 3 weeks or so. Did you see any improvement with intravenous gamma globulin (IVGG)? It tends to show improvement sooner, within 48 hours.

Do you know the underlying cause for your ITP, for example infection or an autoimmune condition, new medication interaction?

REPLY

Just diagnosed with ITP, platelets ranging from 2000-5000. So far IGIV, steroids and Rituxan has not helped. Just diagnosed 3 weeks ago. Anyone else with this issue and was there anything that helped get the platelets up? Bone marrow biopsy has ruled out any type of cancer. Any insight sure would be appreciated.

REPLY
@hoytm40

My platelet count fluctuates from high 60s to low 80s. My Dr. diagnosed me with immune thrombocytopenia ( ITP) but is not sure of what is causing it. Does anyone know.

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Hi @hoytm40,
Fellow ITP members like @rojo36 @hi2l @mjpm2406 @melody12 may also join in to share their experiences.

Immune thrombocytopenia (ITP) used to be called "Formerly known as idiopathic thrombocytopenic purpura". Immune thrombocytopenia is a disorder that can lead to easy or excessive bruising and bleeding. The bleeding results from unusually low levels of platelets — the cells that help blood clot.This disease is caused by an immune reaction against one's own platelets.

Naviv, you asked about foods and supplements that might help increase your platelets. Here's an article that might interest you.
- How to Naturally Increase Your Platelet Count https://www.healthline.com/health/how-to-increase-platelet-count

Eating certain foods and taking supplements may help to increase your platelet count. Your care team can help make the right recommendations for you. Be sure to tell your doctor about any ongoing thrombocytopenia symptoms. If you have a very low platelet count, you may need medical treatment to avoid serious complications.

@hoytm40 and @naiviv do either of you have pre-existing autoimmune conditions?

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My platelet count fluctuates from high 60s to low 80s. My Dr. diagnosed me with immune thrombocytopenia ( ITP) but is not sure of what is causing it. Does anyone know.

REPLY
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