Small or large fiber neuropathy - What percentage is idiopathic?

Posted by nukhan @nukhan, Nov 5, 2021

I am wondering how many members are labeled/ categorized as "idiopathic" when it comes to their neuropathy.

Interested in more discussions like this? Go to the Neuropathy group.

@nukhan, I have idiopathic small fiber PN and have asked that question before and received slightly different answers. The best answer was from an 80 year old neurologist at the support group meeting for the Minnesota Neuropathy Association. His answer on why it's idiopathic was because the idiot neurologist was not able to provide a diagnosis. Then he said the number is probably around 20+ percent of those diagnosed with neuropathy.

From Lab Tests Online – "Causes –
According to the National Institute of Neurological Disorders and Stroke (NINDS), more than 100 types of peripheral neuropathy have been identified. When the cause is unknown, it is referred to as idiopathic neuropathy; about 23% of cases are classified as such."

From – Idiopathic Neuropathy
"How common is idiopathic neuropathy?
Approximately 30 percent of neuropathy cases are due to diabetes, according to the Cleveland Clinic. Between 30 and 40 percent of the remaining cases are idiopathic.

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