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IDH Inhibitors

Posted by jeanneoc @jeanneoc, Feb 20 11:10am

Three months out from craniotomy and it's recommended I try tibsovo, as the newer IDH inhibitor (ivosidenib) tanked my neutrophils and had to come off it. Does anybody have experience taking this?
Seems counterintuitive to take a medication to heal that can harm your bone marrow and or heart - i need monthly EKGs on this pill.
Suggestions?
Thank you!!❣️

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Colleen Young, Connect Director | @colleenyoung | 1 day ago

@jeanneoc, Tibsovo (ivosidenib) is a IDH1 inhibitor. It is typically used to treat acute myeloid leukemia (AML), cholangiocarcinoma (bile duct cancer), or myelodysplastic syndromes (MDS) in patients who have an isocitrate dehydrogenase-1 (IDH1) mutation in their cancer cells.
https://www.mayoclinic.org/drugs-supplements/ivosidenib-oral-route/description/drg-20443890
Has this medication been recommended to treat your glioma?

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jeanneoc | @jeanneoc | 1 day ago
In reply to @colleenyoung "@jeanneoc, Tibsovo (ivosidenib) is a IDH1 inhibitor. It is typically used to treat acute myeloid leukemia..." + (show)
Profile picture for Colleen Young, Connect Director @colleenyoung

@jeanneoc, Tibsovo (ivosidenib) is a IDH1 inhibitor. It is typically used to treat acute myeloid leukemia (AML), cholangiocarcinoma (bile duct cancer), or myelodysplastic syndromes (MDS) in patients who have an isocitrate dehydrogenase-1 (IDH1) mutation in their cancer cells.
https://www.mayoclinic.org/drugs-supplements/ivosidenib-oral-route/description/drg-20443890
Has this medication been recommended to treat your glioma?

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@colleenyoung
Yes, Ive already had radiation and chemo
Also tried Voranigo
Craniotomy was in Nov
so since Im IDH+ dr recommended- thanks for asking

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