Idiopathic Pulmonary Fibrosis: Any clinical trial recommendations?

@dharay
Are you getting oxygen therapy, pulmonary breathing therapy/breathing support treatments and physical/occupational therapy?

You may want to see a dietitian/nutritionist to review your diet/vitamins/minerals and suggest changes/supplements.

It would be good to also take care of your mental health while you deal with and learn more about your condition.

1. https://www.mayoclinic.org/diseases-conditions/pulmonary-fibrosis/diagnosis-treatment/drc-20353695
2. https://www.healthline.com/health/idiopathic-pulmonary-fibrosis/treatment-options-for-ipf
3. https://www.pulmonaryfibrosis.org/patients-caregivers/medical-and-support-resources/clinical-trials-education-center
4. https://www.mayo.edu/research/clinical-trials/diseases-conditions/pulmonary-fibrosis
5. https://www.pulmonaryfibrosis.org/patients-caregivers/education-resources/clinical-trials-blog/clinical-trials/2025/04/29/april-2025-clinical-trial-highlights
6. https://www.lung.org/lung-health-diseases/lung-disease-lookup/pulmonary-fibrosis/patients/how-is-pulmonary-fibrosis-treated/clinical-trials

I researched this for two friends with IPF. Vitamin D, CoQ10, Turmeric are
found to have some activity. I would also consider an anti inflammatory diet.
Inflammation may contribute to fibrosis.

I was diagnosed with Interstitial lung disease which is most likely the same as what you have, I suspect I had it a while before I showed any symptoms. I was given prednisolone 50mg to treat it which had a negative effect on my mood. This was dropped to 25mg. My disease progressed and I was referred to a hospital lung clinic and given mycophenolate in addition to my prednisolone. My condition worsened and I was hospitalised due to hypoxia and spent five weeks intubated in Intensive care. I was moved to a respiratory ward where I was affected by Pseudemonas Aurigenosia, this is a common opportunistic infection that resides in most hospitals. My condition was at the stage of normal oxygen nasal probes were insufficient. I was placed on high flow oxygen therapy. I was assessed for a lung transplant and was successful. I received a lung transplant and am here writing this five years in. You need to accept the fact you need a respiratory specialist and be placed on a lung transplant waiting list, it is a lot to get your head around I know. You do not want to leave it in hope you will get by, you have to be assertive and push for appropriate treatment. I have mental scars from not accepting the severity of my disease and going through what I have. With all my heart and soul, I hope you get well and live a long and happy life.