Ideas for pain relief from Small Fiber Neuropathy (SFN)

Posted by somisgirl @somisgirl, Sep 6, 2019

I just wanted to pass along some ideas for those of you with idiopathic small fiber neuropathy. I am a 60-year-old female in excellent health other than the onset of this about a year ago. I do not have diabetes or any other detectable health issues.
I started some new things a few weeks ago and this week I have had some remarkable relief. I am not sure if what I have done is why, or which thing might have helped, but still wanted to pass this along just to give some of you some things to try.

I wear compression socks. This seems to help with the pain and pressure I feel in my feet and ankles.
I started taking Evening of Primrose oil twice a day.
I have cut my caffeine intake by at least two-thirds and now drink mostly green or black tea. I had heard that caffeine could irritate nerves…worth a shot.
I exercise, which I have been doing for over 20 years. I think it improves circulation which I think really helps with nerve health.
I added niacin. I will aid in blood flow, also good for circulation.
I use a cream called DMSO which i put on my feet and ankles in the morning (numbs the pain)

I don’t know if any of this could be helpful for you or not, But I seem greatly improved recently……I have tried everything and am always looking for new things to try in order to function with this awful condition.
I am still taking 600mg of Gabapentin 3 times a day and 20 mg Citalopram once a day and have been for 9 months. I do not take any other medications.

Blessings to all of you and I hope there is a cure some day. I intend to keep looking for solutions that do not require medications!

@birdierobin

Rachel are used to live around the Jacksonville mayo clinic and it’s pretty nice I hope you get to go and I hope it helps let me know if you need any referrals to anything because I have friends in that area maybe I can help you save some money or something

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@birdierobin – you are the sweetest. That's very nice and I appreciate it. I was just discussing the logistics with my husband earlier. It looks like I could schedule around the beginning of May. I made good progress today. Mayo does not mess around. I learned this last April when I first applied. I may not have gotten accepted to see doctors but they are very efficient, polite and have their stuff together!

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I wanted to share with everybody that I’ve been taking alpha lipoic acid for a few weeks and I have almost no burning in my arms anymore.

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@rwinney

@birdierobin – you are the sweetest. That's very nice and I appreciate it. I was just discussing the logistics with my husband earlier. It looks like I could schedule around the beginning of May. I made good progress today. Mayo does not mess around. I learned this last April when I first applied. I may not have gotten accepted to see doctors but they are very efficient, polite and have their stuff together!

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Wonderful news please keep me posted I’ll see what I can do to help your family going to need a place to stay in that area and for how long?

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@swartzki

I wanted to share with everybody that I’ve been taking alpha lipoic acid for a few weeks and I have almost no burning in my arms anymore.

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That’s wonderful swartz!!!

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@swartzki

I wanted to share with everybody that I’ve been taking alpha lipoic acid for a few weeks and I have almost no burning in my arms anymore.

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@swartzi, that is great news! Do you take R-Ala and what dosage and brand may I ask? I have been taking it for 2 yrs. now and I definitely think it helps me. Helen

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@helennicola

@swartzi, that is great news! Do you take R-Ala and what dosage and brand may I ask? I have been taking it for 2 yrs. now and I definitely think it helps me. Helen

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It’s bluebonnet brand. Alpha lipoic acid. 300 mg. I’ve heard people mention R-ala but forgive my ignorance: I don’t know what the R is for. (Wish it could grow hair). 😔

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@swartzki

I wanted to share with everybody that I’ve been taking alpha lipoic acid for a few weeks and I have almost no burning in my arms anymore.

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@swartzki
Wonderful!

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@swartzki

It’s bluebonnet brand. Alpha lipoic acid. 300 mg. I’ve heard people mention R-ala but forgive my ignorance: I don’t know what the R is for. (Wish it could grow hair). 😔

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The R-ALA is the kind you want. Most over the counter less expensive 🙁 doesn’t do much for you.
https://lpi.oregonstate.edu/mic/dietary-factors/lipoic-acid

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@swartzki

It’s bluebonnet brand. Alpha lipoic acid. 300 mg. I’ve heard people mention R-ala but forgive my ignorance: I don’t know what the R is for. (Wish it could grow hair). 😔

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ha ha, the R-Ala (I have read) is the superior form of Ala and therefore more expensive, but if you are seeing positive results then stick with it. I use a brand which has both forms but I recently purchased a new brand which is just R-Ala. It is a little costlier so I’ll be curious to see if there is any difference. Helen

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@swartzki

It’s bluebonnet brand. Alpha lipoic acid. 300 mg. I’ve heard people mention R-ala but forgive my ignorance: I don’t know what the R is for. (Wish it could grow hair). 😔

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Hi @swartzki, glad to hear you found a product that is helping your neuropathy. I too had heard good things about alpha lipoic acid. Keep taking your supplement. I tried the Superior Labs brand 600mg daily capsule for 4 months. Unfortunately I saw no benefits.

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@rwinney I also have some missed essential oils for my neuropathy and this gives me relieve for quite a while longer then the pain pill I take .

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@lioness

@rwinney I also have some missed essential oils for my neuropathy and this gives me relieve for quite a while longer then the pain pill I take .

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@lioness Good to hear. Lavender seems to be good for neck pain and headaches. Lord knows I need all the help I can get. Do you suggest a certain brand?

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