I just wanted to pass along some ideas for those of you with idiopathic small fiber neuropathy. I am a 60-year-old female in excellent health other than the onset of this about a year ago. I do not have diabetes or any other detectable health issues.
I started some new things a few weeks ago and this week I have had some remarkable relief. I am not sure if what I have done is why, or which thing might have helped, but still wanted to pass this along just to give some of you some things to try.
I wear compression socks. This seems to help with the pain and pressure I feel in my feet and ankles.
I started taking Evening of Primrose oil twice a day.
I have cut my caffeine intake by at least two-thirds and now drink mostly green or black tea. I had heard that caffeine could irritate nerves…worth a shot.
I exercise, which I have been doing for over 20 years. I think it improves circulation which I think really helps with nerve health.
I added niacin. I will aid in blood flow, also good for circulation.
I use a cream called DMSO which i put on my feet and ankles in the morning (numbs the pain)
I don’t know if any of this could be helpful for you or not, But I seem greatly improved recently……I have tried everything and am always looking for new things to try in order to function with this awful condition.
I am still taking 600mg of Gabapentin 3 times a day and 20 mg Citalopram once a day and have been for 9 months. I do not take any other medications.
Blessings to all of you and I hope there is a cure some day. I intend to keep looking for solutions that do not require medications!
@kansasgal – I have socks on for the first time in two months. See photo! I'm optimistic…Pam
Liked by rwinney
@terrydclaar – You have to find a compounding pharmacy in your area or on-line that can make it for you. If you do get a prescription for Phenytoin 10 percent. A 60 gram supply is good for 30 days…Phenytoin is the active ingredient It is brand name Dilantin I assumed micronized for compounding. You can go on-line and find the compounding instructions…my pharmacist had to track down some of the compounding ingredients so it about 10 days or so. This is not a common request. I apply 2 times/day. Pam
Thank you. Is there a way for this group to highlight this issue perhaps through mayo clinic to use its influence for some phamaceutical companies to produce phyntoin 10% cream. This could be one way for some companies not only to earn easy money but also provide some relief to millions of neuropathy sufferers. Converting the already available Phyntoin in capsules form into cream may not be such a huge task for any pharmaceutical company. Just a thought.
@nukhan Well double blind studies have not been done for example…this is a "fringe" off label use. Many things made at compounding pharmacies are like this. My old, now retired, dermatologist "cooked up" his own compounds in his office or had me go to a compounding pharmacy for mystery ointments!..These often are off label, not FDA tested etc. Dilantin is an old drug off patent. No money to be made…Pam
@burningfeetinphoenix
@kansasgal – I will. Second day of treatment. So far so good. Feet did not burn last night! I do have a few unhealed wounds due to loss of sweat glands…they burn a little upon application but it goes away…I am hopeful. Lmk how you do…Pam