IBM Anti-cN-1A (NT5c1A): 5x Normal

After many years of searching for an explanation for my muscle myopathies, bulbar weakness, muscle fatigaability/tightness/cramping, with little meaningful findings other than being positive for the MTHFR gene (with normal homocysteine), I was just found to be positive for Anti-cN-1A (NT5c1A) which is generally associated with IBM.

However, my symptoms go back at least 30 years and they have not hindered me significantly with the exception of two gradual onset debilitating flares, each of which took me many months to recover from.

I’ve been told this is not a typical pattern for IBM. A muscle biopsy is the next step and km trying to get a consult at Mayo.

For folks dealing with IBM, does this sound inconsistent with IBM?

Has anyone tested positive for Anti-cN-1A (NT5c1A) that was diagnosed with anything other than IBM?