1. < Headache & Migraine
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Topiramate for migraines

Posted by topkat2011 @topkat2011, Nov 27, 2025

I was thrown into a city bus window. Face . Head first. The driver tore off before bi was seated. Now I have migraines. That start about 4 am. Like a hot sharp knife going through the back side of my head. I also suffered a horrible horrible concussion.no open trauma. Just bruises. The topiramate was a god send. My neurologist tried several different things

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rissa13 | @rissa13 | Mar 28 7:01am

So my PCP has started me on topiramate for migraines w rizatriptian as a back up. My problem is when they come on there is a bunch of pressure in the top of my spine and base of my skull I do not understand what is causing this. They haven't referred me to neurology yet. Some have said chiropractor will help but I see a chiropractor and almost feel like it has got worse since I've been seeing him. Any suggestions on relief in the meantime until they help me figure this out? Thank you in advance.

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luvrofthelord | @luvrofthelord | Dec 7, 2025
In reply to @hummingbird673 "I have migraines. Topiramate has been a God send for me too. But, I have to..." + (show)
Profile picture for hummingbird673 @hummingbird673

I have migraines. Topiramate has been a God send for me too. But, I have to watch it. I have kidney stones. I take 50 mg twice a day. Plus, I take propranolol 60mg 3 times a day for migraines and essential tremors. The first two doses I had to cut back. It was kicking me down. Slowing down my heart rate too much. So the doctor told me to adjust to how I felt. I have tried Quilipta but topiramate won. I use ubrelvy 100 mg when I get one. I can't afford the ubrelvy and insurance won't pay much. The Abbvie Patient Assistance Program pays for it. (not sure if I spelled Abbvie correctly). I have had migraines since I was 16. (50 years) Finally found great neurologist. I know your pain.

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@hummingbird673 I also use Topiramate and Propranolol for essential tremors but for my migraines I get Botox injections every 10 weeks by my neurologist and that keeps the migraines at bay. I have been getting the injections for about 10 years now and they are covered by Medicare.

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hummingbird673 | @hummingbird673 | Dec 6, 2025

The cancer, treatments and meds take a huge toll on the body and mind. I have seen that in my family and friends. You keep on ticking. Be the Energizer Bunny. Migraines are a pain of their own. I have tried so many different meds.
Some I was allergic to.

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Jody aka mojo244 | @mojo244 | Dec 5, 2025
In reply to @hummingbird673 "@mojo244 Sorry" + (show)
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@mojo244
Sorry

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@hummingbird673
Thanks! This whole stage IV cancer, treatments and aftermath has certainly been a life changing experience physically, mentally and financially for sure.
But even with all of my medical challenges which includes this darn chronic migraine I’m still thankful to be alive!
At 63 I may not be what I used to be and not quite a Timex but I took the licking and still ticking. 😁👏

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hummingbird673 | @hummingbird673 | Dec 5, 2025
In reply to @mojo244 "Just an update that I forgot to add. I checked the Abbie website to get assistance..." + (show)
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Just an update that I forgot to add.
I checked the Abbie website to get assistance but I don’t Qualify.😢🤷‍♂️

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@mojo244
Sorry

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1 reply
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Jody aka mojo244 | @mojo244 | Dec 4, 2025

Just an update that I forgot to add.
I checked the Abbie website to get assistance but I don’t Qualify.😢🤷‍♂️

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1 reply
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Jody aka mojo244 | @mojo244 | Nov 29, 2025
In reply to @hummingbird673 "@mojo244 The company that makes Ubrelvy has a patient assistance program. The company AbbVie pays for..." + (show)
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@mojo244
The company that makes Ubrelvy has a patient assistance program. The company AbbVie pays for my Ubrelvy 100%.
They pay for other medications. I took Qulipta and they took care of that. They have an online application plus what meds they will pay for, you can check out. Ubrelvy has been a God send for my migraines. I have no side effects from it. You might want to check it out. I have lived with that pain, too.
Mindy

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@hummingbird673
Thank you, I will check that out for sure!
Jody

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hummingbird673 | @hummingbird673 | Nov 29, 2025
In reply to @mojo244 "@hummingbird673 I hear you on affordable, my copayment is $400 for 9 doses of Nurtec or..." + (show)
Profile picture for Jody aka mojo244 @mojo244

@hummingbird673 I hear you on affordable, my copayment is $400 for 9 doses of Nurtec or Ubrelvy and $1,100 for Ajovy….needless to say I take none of them!!!!
I do get Botox injections every 3 months but that only reduces my migraine. I live with 7-10 pain level 24/7
Jody

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@mojo244
The company that makes Ubrelvy has a patient assistance program. The company AbbVie pays for my Ubrelvy 100%.
They pay for other medications. I took Qulipta and they took care of that. They have an online application plus what meds they will pay for, you can check out. Ubrelvy has been a God send for my migraines. I have no side effects from it. You might want to check it out. I have lived with that pain, too.
Mindy

REPLY
1 reply
Profile picture for Jody aka mojo244
Jody aka mojo244 | @mojo244 | Nov 29, 2025
In reply to @hummingbird673 "I have migraines. Topiramate has been a God send for me too. But, I have to..." + (show)
Profile picture for hummingbird673 @hummingbird673

I have migraines. Topiramate has been a God send for me too. But, I have to watch it. I have kidney stones. I take 50 mg twice a day. Plus, I take propranolol 60mg 3 times a day for migraines and essential tremors. The first two doses I had to cut back. It was kicking me down. Slowing down my heart rate too much. So the doctor told me to adjust to how I felt. I have tried Quilipta but topiramate won. I use ubrelvy 100 mg when I get one. I can't afford the ubrelvy and insurance won't pay much. The Abbvie Patient Assistance Program pays for it. (not sure if I spelled Abbvie correctly). I have had migraines since I was 16. (50 years) Finally found great neurologist. I know your pain.

Jump to this post

@hummingbird673 I hear you on affordable, my copayment is $400 for 9 doses of Nurtec or Ubrelvy and $1,100 for Ajovy….needless to say I take none of them!!!!
I do get Botox injections every 3 months but that only reduces my migraine. I live with 7-10 pain level 24/7
Jody

REPLY
1 reply
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