I recently had surgery to remove NET in small intestine

Posted by hans051275 @hans051275, Feb 12, 2025

They did a rt hemicolectomy and small bowel resection. They also did a wedge resection of my liver. They removed all of the tumor. Liver pathology came back clear. What concerns me is 7 out of 20 lymph nodes came back positive and they are telling me there is no treatment. They said high reoccurence and to just do scans and lab work every 6 months. Is this true no treatment just wait for reoccurence???
--Well-differentiated neuroendocrine tumor, grade 2.Tumor is 1.8 cm in greatest dimension.
Lymphvascular invasion is identified.
Perineural invasion is identified.
Number of lymph nodes examined: 20.
Number of lymph nodes involved: 7.
Maximum size of metastasis (glass slide measurement): 4 mm

Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.

cu2 | @cu2 | Apr 12, 2025

In reply to @hans051275 "Ct scan in 6 months" + (show)

I go through that now every six months but whatever it takes.

cu2 | @cu2 | Apr 12, 2025

In reply to @jlsgt "I'm in the same boat. Well differentiated, had small bowel resection, still have a mass and..." + (show)

That’s my plan know matter WHAT to LIVE long and STRONG!! I have scans every six months and I been doing this since the beginning.

hans051275 | @hans051275 | Feb 25, 2025

Ct scan in 6 months

Colleen Young, Connect Director | @colleenyoung | Feb 25, 2025

In reply to @depoeske "My doctor is saying the same thing. Thank you for posting. It was very helpful!" + (show)

@depoeske, what is your treatment plan?

hans051275 | @hans051275 | Feb 25, 2025

Great news!

rcooke1961 | @rcooke1961 | Feb 25, 2025

In reply to @hans051275 "Thanks for sharing your story. My doctor told me good chance my next one would probably..." + (show)

The follow-up PET Scan was good, with no evidence of the disease present. The microwave ablation successfully removed the tumor. MRI scheduled in 3 months.

hans051275 | @hans051275 | Feb 21, 2025

I am feeling good now and yes I can eat. They are scheduling me for ct scans every 6 months.

Teresa, Volunteer Mentor | @hopeful33250 | Feb 21, 2025

Hello @hans051275 and welcome to the NETs support group on Mayo Connect. I agree with @dbamos1945 in getting a consultation with a NET specialist. If you live near any of the three Mayo locations, that would be a great place for a consultation. Here is a link with information about obtaining an appointment, http://mayocl.in/1mtmR63.

I have had three surgeries for NETs in the duodenal bulb. These surgeries have been over 20 years. This type of cancer is often slow growing and you need to be aware of the need for regular surveillance through CT scans, MRIs, or other tests that your oncology team may recommend. There have been many advances in treatment for NETs over the past 20 years since I began this journey.

How are you feeling? Are you able to eat OK?

hans051275 | @hans051275 | Feb 21, 2025

In reply to @hans051275 "I don't know why they said liver?? I have not been on anything for my stomach...." + (show)

My oncologist said because the liver and colon feed from same blood supply??

dbamos1945 | @dbamos1945 | Feb 20, 2025

Check with all cancer centers for NET Specialist for consultation/2nd opinion on disease and future treatment. This may be virtual, but if not take all your records with you to appt. You will get superior care and advice.