Looking for others with Pituitary Adenoma

University/Jackson Memorial can help. Please even if just to get 2nd opinion

Here both doctor information, keep in touch.

Neurologist: Ronald Bienveniste 305 243-6946
U Sylvester 3rd Floor
rbenveniste@med.miami.edu

Endocrinologist: Dr Atil Kargi
UM Endocrinologist
305 243-3636
Same place has neurologist

I am sorry to hear you are feeling so bad.My husband was diagnosed with pituitary adenoma, and diagnosed with Cushing disease, he had surgery and had pituitary adenoma removed and where his was the doctor said possibility might not get it all but so far nothing everything is fine. He does go every 6 to a year to Endocrinologist for follow up. He was told that if it return he couldn't have a 2nd surgery and maybe he will be able to do mega knife. But that is why go and see the doctor I posted for another opinion.

Yes. I had 2 pituitary surgeries at mayo in Jacksonville 12/19 and 4/7/20. Both unsuccessful. I was diagnosed with Cushing disease and ended up having both adrenal glands removed 5/7/20. I am still having problems and losing hope. 3/13/21 cheryl

Hello @thamick and welcome to Mayo Clinic Connect. I am so glad you found Connect and this discussion that has allowed to you to feel less alone in your healthcare journey.

If you are interested in including Mayo Clinic in your list of options for a second opinion, experts at Mayo Clinic can help you navigate your healthcare journey, answer your questions, and guide you through the treatment plan. When you call at any of our 3 campuses, you will be offered an appointment within 48 hours http://mayocl.in/1mtmR63. Be sure to mention the Cerebrovascular 48-Hour Access Program.

Will you please update us along your journey?

Thank you so much for the info and God bless you all. I have felt so alone trying to get answers. Your story inspires me and gives me hope.

Hi, my husband had surgery 3 years ago. He had adenoma removed. I tell that in combination with Endocrinologist and and his surgeon he is doing great. I tell you best thing even if you do not live in miami,still come and see the doctor. University of miami/Jackson Memorial can help. Please even if just to get 2nd opinion do it, I also tell you our faith in God has Cristian evangelist made everything possible.

Here both doctor information, keep in touch.

Neurologist: Ronald Bienveniste 305 243-6946
U Sylvester 3rd Floor
rbenveniste@med.miami.edu

Endocrinologist: Dr Atil Kargi
UM Endocrinologist
305 243-3636
Same place has neurologist.

Hi...I can't believe that I am not alone in my suffering. I need help finding a doctor who knows how to deal with the issues caused by my pituitary adenoma. Diagnosed w 7mm adenoma in 2012 and suffering extreme headaches, syncope , weight gain and dizziness. Severe problems with eyesight. My memory and ability to find words is terrible. Please give suggestions for someone who can help me as the doctors here don't know what to do or they tell me that pituitary adenoma have no symptoms. I know my body and I know what I have gone through. Trigemiinal neuralgia and severe one sided headaches lasting 3 to 5 days. PLEASE HELP...Thamick

The migraine passed, thank you. I realized I got viral meningitis again (fourth time) when I got my IVIG infusion on Saturday. That's why the migraine, stiff neck, fever, nausea, chills, etc. I have to get IVIG every three weeks because my immune system doesn't work anymore. I really am in pretty bad shape. But I went off sugar five years ago and I feel like I'm at least half my age since I did that. As sick as I am - I still feel like I'm in my 30s since ditching sugar.

How is he doing with cushings? I was recently diagnosed with cushings

Yes. Mayo performed pss. Now having ipss march 13