I have Cerebral Small Vessel Disease - so far caused loss of balance

Hi,
I find it remarkable that mostly it is the left leg that is problematic with a lot of people. I get intense migrains in the right rear of the brain which I believe is the motor control part of the brain. I'm not sure this has anything to do with anything, but it is just another symptom unexplained. Possibly CSVD is more advanced in some areas of the brain than others. I wonder if it relates to being right footed or left footed. I happen to be right footed. Just when I think I have a handle on my situation I'm forced to review my plight with yet another twist. The only end I see for me is to try and ignore it all, until I am no more.
Cheers

Every little bit helps; it is just nice to be able to talk to people who are experiencing the same thing. I too have to concentrate on walking, especially in grassy areas. I seem to lilt to the left when I walk. I have gotten so I take my husband's hand whenever he is with me, that seems to help with the balance issue. It is frustrating not being able to do the things I used to do with ease and have to think about every move I make. I continue to try to bowl, not very good at it anymore but I bowl with ladies like me who are older and experiencing aging issues. That seems to help also. Good luck to you and Happy Easter.

Hi,
With both CSVD and Autonomic polyneuropathy both having similar symptoms it is difficult to know which is causing what. I never associated CSVD with my balance issues but have gone from having difficulty standing and walking to being able to walk and stand well. In the short time since diagnosis I have forced myself to stand and walk, always pushing to do it better. I have found that concentrating on what I'm doing works for me. No longer is my ability to stand and walk automatic, the more I concentrate the better I manage until my attention is diverted then I struggle again. With many health issues going on and little medical help I do what ever I find suits me best, actively managing my situation to my best advantage. This may not be helping my health issues but trying to be comfortable is my focus despite them all.
Cheers

I feel like one by one I am giving up things I love to do. I am working real hard to find new things to do in my new world. I’m so glad to find this group to share things with and maybe pickup on some new things. Reading your posts I am reminded of an issue that should have been a clue. Probably 2020, maybe further back, I wanted to start riding bike in my retirement. I live by a very popular bike trail. Bought a nice bike and long story short I couldn’t ride it in no way. Well I ended up with a trike. I was probably in the silent/ mild level of CSVD, affecting my balance. Anyway, I am looking forward to sharing. Thanks!

I ride my bike to try to get exercise. I do not get dizzy, but do experience light headefness. What i have been told by the neurogist is that many older people have CSVD. That almost 100 percent of people over 90 have it. Has affected my energy also, but get this weak feeling that last couple of years.

Hi, I am 68, I too was diagnosed at the moderate level. I keep as busy as possible, however watch a lot of tv. Anything I do I am always fighting thru pain in my legs or worried about the dizzy thing, all very tiring. So I do a chore, sit down and repeat that all day. I drive as little as possible. I have two wonderful old dogs that are my life line they keep me going everyday. What do you find to do that is enjoyable?

Hi, I am a 72 year old diabetic. I have moderate CSVD. Noticed the past couple of years my balance and energy are bad, but have had insomnia the last couple of years. I had to stop working because of the symptoms. Walking is changed too. It's hard for me to distinguish if what i feel sometimes is from diabetes or CSVD? I am also interested on what others have.

I too have been diagnosed with CSVD and would love to get more information and discussion regarding the disease and symptoms. I was diagnosed August 2024 at moderate level. Since then I have been miserable with brain fog, balance headaches and so very fatigued. About all I do well is sleep. I’d be interested to know what symptoms others are experiencing, at what levels, and anything more about CSVD. THANKS, Debbie

I am really glad to find a support group or discussion group. I was diagnosed August 2024 at moderate level. Since then I have been miserable with brain fog, balance headaches and so very fatigued. About all I do well is sleep. I’d be interested to know what symptoms others are experiencing, at what levels, and anything more about CSVD.

I concentrate on eating a Mediterranean Diet, fruits, vegetables, and protein. But my appetite is bad, I think because of my fatigue, I am very uncomfortable exercising, which I was told is very important to do. I don’t socialize at all any more.

I am really glad to find a support group or discussion group. I was diagnosed August 2024 at moderate level. Since then I have been miserable with brain fog, balance headaches and so very fatigued. About all I do well is sleep. I’d be interested to know what symptoms others are experiencing, at what levels, and anything more about CSVD. THANKS, Debbie