I have Cerebral Small Vessel Disease - so far caused loss of balance

Hi @sue60, welcome to Connect.
I'd like to connect you with @caregiver49, who is also dealing with small vessel disease and would like to talk with others. Her biggest issue at the moment is with unrelenting fatigue.

Sue, do you struggle with fatigue as well?

It could be however I've lumbar stenosis along with Cervical Spondylostis discs gone with encroachment of nerves ..plus an Arachnoid Cyst...I'm under uro/gynaecology
Neurosurgeons are dubious about operating that is When bladder/bowel loose all sensation ..if issue with bladder see a specialist...

Hi angelic scripts is that the reason we have bladder problems.

My husband has small vessel diease of the brain and i agree dictors cant really tell you what to expect some days are worse than others but all days are challenging

I am on a statin, high blood pressure pills , an aspirin a day, my heart is erratic, I fire very easily, and am losing interest in everything. Altho my cardiologist is ordering nuclear testing, she feels the disease is progressing and there is little probably can be done. I'm looking for any input from anyone. Dizzy spells and off balance has become a problem....anyone have any symptoms like this.

Neurogenic Bladder I've an issue with bladder Signals from brain misfiring ...

I'm so surprised that I've found someone who is having bladder problems like me ,tired lots, heavy sweating, stay strong do hobbies to keep your mind off it sally.

Hi, I was diagnosed with csvd 3 years ago. I had an episode of off balance, dizziness, lose of bladder a nd bowel, heavy sweating, diagnosed with having had a stroke. I feel at this point it's effected my everyday life. At the time I was shocked with it...but now, I am tired, lack of energy, off balance, very sore eyes as well now. Also heart palpitations ...I think it's worsening...At the 3 rdyear point. Up to last year I was walking 35 miles a week. Chopped a nd stacked my own wood.. Now I am weak...it's frightening. How do you keep going with this.

I don't think small vessel disease of the brain is well understood and it is difficult for any doctor to prepare one for what to expect. Symptoms occur due to changes to different parts of the brain so vary from one person to the next. Dr Michael Zeineh of Stanford University has been in the news recently about a relationship between Chronic Fatigue Syndrome and White Matter brain changes. Keep in mind that brain changes are more extensive in some patients more than others. Hopefully those with less will live to learn bio markers are confirmed that will lead to treatment. Presently my research has not turned up much other than controlling cholesterol, Blood pressure, thinning blood which is basically stroke prevention. Best to all.