I have primary progressive MS

Posted by kendoe @kendoe, Sep 18 9:35pm

I got diagnosed late with primary progressive MS. I am in a lot of pain. Feet feel like stone(pain), arms and legs feel like they’re sunburned and major fatigue. I am currently on Ocrevas infusion. Any help would be appreciated.
I was thinking about trying Neurovital neuropathy, supplements anyone had any luck with these please point me in the right direction, Ucsf is not helping much

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John, Volunteer Mentor | @johnbishop | Sep 19 7:51am

Welcome @kendoe, Sorry to hear that you aren't getting much help at UCSF. I am not familiar with the Neurovital neuropathy supplements but thought I would tag @hansa and @angielewis1959 who mentioned being diagnosed with primary progressive MS to see if they may have some experience to share with you.

You may also be interested in scanning through other discussions on Connect that mention progressive MS. Here is a search link that lists the different discussions and member comments - https://connect.mayoclinic.org/search/discussions/?search=progressive%20MS.

There are a few member discussing Ocrevas in the following discussion that might be helpful:
-- Ocreves Zunovo for Relapsing Remitting MS: https://connect.mayoclinic.org/discussion/ocreves-zunovo-for-relapsing-remitting-ms/

Did you mean NeuroVite brain supplements when you mentioned Neurovital neuropathy supplements?