Anyone have both Multiple sclerosis (MS) and Myasthenia Gravis (MG)?

Posted by liz2026 @liz2026, Feb 14 8:49pm

Hi, Im new to the site. Looking for others that have MS and MG. Noticing my facial muscles get very stiff.. anyone? For what i found is more than likely the MS. Found some facial excercises n seems to help. Have some other crazy symptoms like i can taste for example my perfume or others scents on me or around me. This makes me feel sometimes like im crazy..anybody else experinces this? Looking for proactive suggestions or ideas. We r all going thru a challenging path but good mindset and attitude goes a long way. ☺️

Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.

Becky, Volunteer Mentor | @becsbuddy | Feb 15 9:26pm

@liz2026 Welcome to MayoClinicConnectConnect ! I’m glad that you’re here. I see that you asked your questions yesterday and have been patiently waiting for some answers. Sorry that I can’t answer them but this very helpful group can, so will wait for them to respond.
If I may ask, how are you managing your diseases?

Colleen Young, Connect Director | @colleenyoung | Feb 16 7:37pm

I add my welcome, @liz2026. I'm tagging a few other members like @jardillo @ess77 @jml2288 @Erinmfs @californiazebra, who may have experiences with multiple sclerosis (MS) or myasthenia gravis (MG) or both to share with you.

I'm not surprised that you can taste some of the scents that you smell. Taste and smell are closely linked.

I'm glad that you found some facial exercises to help with the stiffness that you're experiencing. Often MG can lead to muscle weakness, so I can imagine these exercises help with that as well. Where did you find the exercises? Is the stiffness constant or are there triggers that can make it worse?

Zebra | @californiazebra | Feb 16 9:12pm

In reply to @colleenyoung "I add my welcome, @liz2026. I'm tagging a few other members like @jardillo @ess77 @jml2288 @Erinmfs..." + (show)

@colleenyoung
I was probably tagged because I have mentioned that I was tested for MG and MS and have a rare demyelinating neuropathy that can behave like MG with muscle fatigue and weakness including dysphagia that gets more severe with muscle usage but I do not have MS or MG. My only advice would be to seek out a neurologist that specializes in neuromuscular disorders. Prayers for you in your medical battles.