1. < Neuropathy

I have had S.F.N. for quite a few years including Sjogrens Syndrome

Posted by penn @penn, Feb 4 4:24pm

First I would like to share this, My neuropathy was stable with IVIG Infusions, than on April 26 2023 I had Hip Surgery that destroyed my life. Look up Mayo Clinic, S.F. Neuropathy and hip surgery. It is now 2/4/24 I'm worse. Hip surgery did not fail. What happened was my nerves were destroyed cutting them and the pain is unbearable, groin, entire leg, burning hip, thigh all the time. Now my spines worse.

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Moderator
Colleen Young, Connect Director | @colleenyoung | Feb 4 6:40pm

Hi @penn, when you say "look up Mayo Clinic S.F. Neuropathy and hip surgery" are you wishing to direct people to the beginning of your story here? https://connect.mayoclinic.org/comment/964802/

I'm sorry to hear that the surgery had such a serious impact on your pain and neuropathy. Are you continuing with IVIG infusions?

REPLY
1 reply
penn | @penn | Feb 5 1:49pm

Hi Colleen,
Yes I am.
The site says, "Mayo Clinic Study finds Nerve Damage after Hip surgery may be due to Inflammation"
It's very informative and that is how I found out and called my Hip Surgeon to no avail!!!!!!!!!!!!!!!!!! Small Fiber Neuropathy. All nerve pain.
I hope this will help !!!!!!!!!!!!!!
Have good day!

REPLY
penn | @penn | Feb 5 1:55pm
In reply to @colleenyoung "Hi @penn, when you say "look up Mayo Clinic S.F. Neuropathy and hip surgery" are you..." + (show)
@colleenyoung

Hi @penn, when you say "look up Mayo Clinic S.F. Neuropathy and hip surgery" are you wishing to direct people to the beginning of your story here? https://connect.mayoclinic.org/comment/964802/

I'm sorry to hear that the surgery had such a serious impact on your pain and neuropathy. Are you continuing with IVIG infusions?

Jump to this post

Yes, but my hip pain down to toes nerve pain IVIG works better now on my left leg. Hip Surgery was on right side. I always ask question why I didn't I don't know! It as changed my life forever!
Now I'm getting a full MRI, I need sedation IV because a can't stay still from nerves and pain.
Have a good day!!!
HOPE THIS WILL HELP OTHERS!
Sincerely

REPLY
1 reply
Mentor
John, Volunteer Mentor | @johnbishop | Feb 5 2:13pm
In reply to @penn "Yes, but my hip pain down to toes nerve pain IVIG works better now on my..." + (show)
@penn

Yes, but my hip pain down to toes nerve pain IVIG works better now on my left leg. Hip Surgery was on right side. I always ask question why I didn't I don't know! It as changed my life forever!
Now I'm getting a full MRI, I need sedation IV because a can't stay still from nerves and pain.
Have a good day!!!
HOPE THIS WILL HELP OTHERS!
Sincerely

Jump to this post

Hi @penn, I think this is the newsfeed article that you mentioned.

https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-study-finds-nerve-damage-after-hip-surgery-may-be-due-to-inflammation/
REPLY
penn | @penn | Feb 5 8:26pm

Hi John, YES IT IS AND IT'S SO TRUE!
MY PAIN IS GETTING WORSE AND WORSE, I'M GOING FOR AN MRI,I NEED IV SEDATION OR ANASTASIA BECAUSE I CAN'T STOP MOVING AT ALL.
I WISH PEOPLE HERE WOULD READ THIS BEFORE THEY ANY DECISIONS. THIS HAS KILLED MY LIFE.

REPLY
1 reply
hardin0102 | @hardin0102 | Feb 5 9:09pm
In reply to @penn "Hi John, YES IT IS AND IT'S SO TRUE! MY PAIN IS GETTING WORSE AND WORSE,..." + (show)
@penn

Hi John, YES IT IS AND IT'S SO TRUE!
MY PAIN IS GETTING WORSE AND WORSE, I'M GOING FOR AN MRI,I NEED IV SEDATION OR ANASTASIA BECAUSE I CAN'T STOP MOVING AT ALL.
I WISH PEOPLE HERE WOULD READ THIS BEFORE THEY ANY DECISIONS. THIS HAS KILLED MY LIFE.

Jump to this post

I am so sorry for you and I truly feel your pain. I had a CATH procedure to check my heart and when I woke up, I had the worst foot and lower leg neuropothy pain that I had ever experienced. My Norco did nothing towards relief and when I contacted my PCP, he said that I would learn to adjust. After testing a few otc products, I found that Benedryl Hcl 25mg pills (2pills every 4 hours) controlled the pain and the contractions.

REPLY
1 reply
Mentor
John, Volunteer Mentor | @johnbishop | Feb 6 8:12am
In reply to @hardin0102 "I am so sorry for you and I truly feel your pain. I had a CATH..." + (show)
@hardin0102

I am so sorry for you and I truly feel your pain. I had a CATH procedure to check my heart and when I woke up, I had the worst foot and lower leg neuropothy pain that I had ever experienced. My Norco did nothing towards relief and when I contacted my PCP, he said that I would learn to adjust. After testing a few otc products, I found that Benedryl Hcl 25mg pills (2pills every 4 hours) controlled the pain and the contractions.

Jump to this post

Hi @hardin0102, Welcome to Connect. Sorry to hear that your CATH procedure caused lower leg neuropathy pain. From what I've read it's one of the rare side effects of the procedure. I did find and article you might find helpful if you haven't already seen it.
--- What to know about leg pain after heart ablation: https://www.medicalnewstoday.com/articles/leg-pain-after-heart-ablation

How long ago did you have the CATH procedure? Did the surgeon or doctor discuss anything about the recovery time?

REPLY
1 reply
penn | @penn | Feb 6 3:50pm
In reply to @johnbishop "Hi @hardin0102, Welcome to Connect. Sorry to hear that your CATH procedure caused lower leg neuropathy..." + (show)
@johnbishop

Hi @hardin0102, Welcome to Connect. Sorry to hear that your CATH procedure caused lower leg neuropathy pain. From what I've read it's one of the rare side effects of the procedure. I did find and article you might find helpful if you haven't already seen it.
--- What to know about leg pain after heart ablation: https://www.medicalnewstoday.com/articles/leg-pain-after-heart-ablation

How long ago did you have the CATH procedure? Did the surgeon or doctor discuss anything about the recovery time?

Jump to this post

Hi John, you sent that to me by mistake. I wanted to let you know so that person will receive it.

REPLY
1 reply
Mentor
John, Volunteer Mentor | @johnbishop | Feb 6 5:06pm
In reply to @penn "Hi John, you sent that to me by mistake. I wanted to let you know so..." + (show)
@penn

Hi John, you sent that to me by mistake. I wanted to let you know so that person will receive it.

Jump to this post

Hi @penn, Actually I replied to your reply that was directed to @hardin0102. I used their member name in my response so that they would receive an email notification.

REPLY
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