I have Dupuytren's Contracture Disease . How can I cope with this?

Posted by Etta Dutch @ettadutch, Oct 17, 2011

I have Dupuytren’s Contracture Disease . How can I cope with this?

Liked by Leonard

@rosemarya Me friend who has Dupuytrens contracture has had her finger in a brace didn't help at all she had a injection I'm not sure what but helped a little she said .All this and her friend My Dr isn't any better .People are different in how they respond hopefully it will be better for others

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@rosemarya

@scardycat, @lioness, @anniebrook, @capausz, @jakedduck1

My husband had his appointment about his Dupuytren's Contacture. Here is our finding: The Ziaflex is not an option because it is a temporary fix. The needling procedure might be okay for small area, but not for a larger area like his. Surgery is the only option for him but not necessary until/if he can't flatten his hand as I have seen described in a previous response. So we are on a watch and wait. He has no pain.

What is happening with your Dupuytren's? Any updates?

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My nodules are about same no contracture yet, but getting arthritis in my thumb👎🏻, ortho doc said they usually do nothing like you stated until you can’t flatten hand.

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@rosemarya, since my injection, my hand has totally flattened out and become pain free. However, I now have a trigger finger which I did not have before. If the trigger finger becomes too bothersome, my doctor said they will go in and cut the ligaments causing the trigger finger.

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@capausz

@rosemarya, since my injection, my hand has totally flattened out and become pain free. However, I now have a trigger finger which I did not have before. If the trigger finger becomes too bothersome, my doctor said they will go in and cut the ligaments causing the trigger finger.

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@capausz
Hi,
If the ligaments are cut won’t to finger/s be unable to flex & contract?
There was no treatment for my Dads contractures but that was nearly 50 years ago. The doctors said the surgery would only open his hand, basically for cosmetic reasons only. No functionality would be gained through surgery. Are there newer procedures that help straighten out the fingers and regain functionality?
My Mom has a Contracture of her L hand, wrist and elbow. I have mentioned these injections to various doctors and pharmacists and none heard of them. They only mention Botox which is short acting. Personally I wouldn’t want that poison injected in me especially for something ongoing.
Has anyone had Contracture surgery?
Thanks kids,
Jake

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@capausz
Did your extension muscles work at all prior to your injections? Were you able to open your fingers even very slightly?
Jake

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@jakedduck1

@capausz
Did your extension muscles work at all prior to your injections? Were you able to open your fingers even very slightly?
Jake

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@jakedduck1, yes, Jake, I could open my hand almost totally, including my ring finger. However, it was very painful. In fact, it got to the point that my hand had a deep ache all the time. That went away within two weeks after the injection and my hand started to flatten out.

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@capausz

@jakedduck1, yes, Jake, I could open my hand almost totally, including my ring finger. However, it was very painful. In fact, it got to the point that my hand had a deep ache all the time. That went away within two weeks after the injection and my hand started to flatten out.

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@capausz
My Mom can’t move her fingers at all and the slightest pressure causes intense pain. Do you think these injections might help loosen up the fingers?
Jake

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Does anyone know about any surgical procedures that loosen up the fingers without cutting the tendons and making the hand non functional or is contracture surgery still back in the dark ages?
Jake

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@jakedduck1

@capausz
Hi,
If the ligaments are cut won’t to finger/s be unable to flex & contract?
There was no treatment for my Dads contractures but that was nearly 50 years ago. The doctors said the surgery would only open his hand, basically for cosmetic reasons only. No functionality would be gained through surgery. Are there newer procedures that help straighten out the fingers and regain functionality?
My Mom has a Contracture of her L hand, wrist and elbow. I have mentioned these injections to various doctors and pharmacists and none heard of them. They only mention Botox which is short acting. Personally I wouldn’t want that poison injected in me especially for something ongoing.
Has anyone had Contracture surgery?
Thanks kids,
Jake

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@jakedduck1
Jake, They don't cut the tendons for Dupuytren's. The condition affects a layer of tissue that lies under the skin of your palm. Knots of tissue form under the skin — eventually creating a thick cord that can pull one or more fingers into a bent position. Treatment involves removing or breaking apart the cords that are pulling your fingers toward your palm.

Mayo Clinic Patient Care & Health Information>Diseases & Conditions>Dupuytren's Contracture > Diagnosis and treatment
https://www.mayoclinic.org/diseases-conditions/dupuytrens-contracture/diagnosis-treatment/drc-20371949

Liked by Leonard

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@rosemarya

@jakedduck1
Jake, They don't cut the tendons for Dupuytren's. The condition affects a layer of tissue that lies under the skin of your palm. Knots of tissue form under the skin — eventually creating a thick cord that can pull one or more fingers into a bent position. Treatment involves removing or breaking apart the cords that are pulling your fingers toward your palm.

Mayo Clinic Patient Care & Health Information>Diseases & Conditions>Dupuytren's Contracture > Diagnosis and treatment
https://www.mayoclinic.org/diseases-conditions/dupuytrens-contracture/diagnosis-treatment/drc-20371949

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@rosemarya
Hi there,
I didn’t mean to imply my Mom or Dad for that matter had Dupuytren's contractures. I know there are numerous Contracture types but I’m not familiar with the different ones. I believe she damaged one or more nerves when she broke her shoulder but who knows.
I appreciate all the information from everyone.
Thanks much,
Jake

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My husband is a diabetic, testing sugar by his fingers four times a day. He tests only 3 fingers, not the others because he has problems with motor coordination. His handwriting looks like chicken scratch, really. But after pricking his 3 fingers for several years, he has developed horrible pains in those three fingers. He was referred by his endocrinologist to a rheumatologist. His diabetes doctor didn't think his pain was from pricking his fingers, but in my mind there is no other conclusion. I wasn't there when he spoke to her, so don't know exactly what was said. But then he saw the rheumatologist who diagnosed him with Dupuytren. However, from looking up about Dupuytren, I see in the description that the fingers are usually bent. His fingers are not bent, just always in horrible pain. He didn't tell the rheumatologist that those are the only 3 fingers he pricks every day. I guess I need to speak to the doctor or his nurse, but this doctor doesn't have a real good reputation on the internet. So I doubt I'll get a good answer.

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Hi @cindiwass that must be confusing. You may have noticed I moved your post to this existing discussion on Dupuytren's contracture disease so that you can see what others have had to say about this. Simply click VIEW & REPLY in your email notification to get to your post.

@capausz @lioness and @rosemarya have experience with Dupuytren's and may be able to share their experience.

If you are worried about the current rheumatologist he is seeing, do you have another in the area you can go see?

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@cindiwass

My husband is a diabetic, testing sugar by his fingers four times a day. He tests only 3 fingers, not the others because he has problems with motor coordination. His handwriting looks like chicken scratch, really. But after pricking his 3 fingers for several years, he has developed horrible pains in those three fingers. He was referred by his endocrinologist to a rheumatologist. His diabetes doctor didn't think his pain was from pricking his fingers, but in my mind there is no other conclusion. I wasn't there when he spoke to her, so don't know exactly what was said. But then he saw the rheumatologist who diagnosed him with Dupuytren. However, from looking up about Dupuytren, I see in the description that the fingers are usually bent. His fingers are not bent, just always in horrible pain. He didn't tell the rheumatologist that those are the only 3 fingers he pricks every day. I guess I need to speak to the doctor or his nurse, but this doctor doesn't have a real good reputation on the internet. So I doubt I'll get a good answer.

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Hello @cindiwass

I would encourage you, as did @ethanmcconkey, to get a second opinion from another rheumatologist in your area. It is very important to feel trust in the medical team you are using. If you need help finding another doctor you can contact your insurance company and see if they have a recommendation.

Do you know of another specialist that you could see?

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@cindiwass

My husband is a diabetic, testing sugar by his fingers four times a day. He tests only 3 fingers, not the others because he has problems with motor coordination. His handwriting looks like chicken scratch, really. But after pricking his 3 fingers for several years, he has developed horrible pains in those three fingers. He was referred by his endocrinologist to a rheumatologist. His diabetes doctor didn't think his pain was from pricking his fingers, but in my mind there is no other conclusion. I wasn't there when he spoke to her, so don't know exactly what was said. But then he saw the rheumatologist who diagnosed him with Dupuytren. However, from looking up about Dupuytren, I see in the description that the fingers are usually bent. His fingers are not bent, just always in horrible pain. He didn't tell the rheumatologist that those are the only 3 fingers he pricks every day. I guess I need to speak to the doctor or his nurse, but this doctor doesn't have a real good reputation on the internet. So I doubt I'll get a good answer.

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@cindiwass, My husband has Dupuytren Contracture, and for him there is no pain. He does not have diabetes. He noticed it when his fingers would not release when he made a fist or closed his hand, PCP sent him to orthopedist who wanted to do surgery. However hubby chose to seek a 2nd opinion with a hand surgeon. In my husband's case, one of the tests was whether he could place his hand flat on a surface.
I also think that 2nd opinion with a different rheumatologist sounds like a good idea.

Liked by lioness

REPLY
@jakedduck1

@capausz
Hi,
If the ligaments are cut won’t to finger/s be unable to flex & contract?
There was no treatment for my Dads contractures but that was nearly 50 years ago. The doctors said the surgery would only open his hand, basically for cosmetic reasons only. No functionality would be gained through surgery. Are there newer procedures that help straighten out the fingers and regain functionality?
My Mom has a Contracture of her L hand, wrist and elbow. I have mentioned these injections to various doctors and pharmacists and none heard of them. They only mention Botox which is short acting. Personally I wouldn’t want that poison injected in me especially for something ongoing.
Has anyone had Contracture surgery?
Thanks kids,
Jake

Jump to this post

Would Physical therapy where the therapists actually DO the exercises with you help? Like Active PT in Rochester, by the Rochester Athletic Club.

Totally with you on Botox! Botulism…

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