I have debilitating insomnia issues where I cannot sleepFor 4-10 night

Posted by mkean1250help @mkean1250help, Aug 17 12:00pm

I have debilitating insomnia issues at 75 years of age. I have had these my adult life., it is so debilitating that I cannot even drive my car or go about my daily routines because my head is spinning around and I feel like I’m literally drunk intoxicated, however, I am not
I have been given every drug by a different doctors along the way and each one of them has had major side effects, including Ambien. I just want to know I’m not the only one who is sitting up night after night after night in my bed crying because I cannot shut my brain down. I have had some thoughts of suicide lately because I get so sad about the situation that I cannot control.

Interested in more discussions like this? Go to the Aging Well Support Group.

Oh, I sure understand. Over 30 years ago, probably closer to 40 I was given a schedule 4 med for anxiety and was told it was non-dependent. It helped my insomnia too. Fast forward now at age 79 I'm stuck. Though original doc reduced dosage to 2 mg a day I feel I've been labeled an addict now by the same doctors who shoved me as many as I wanted. Well, actually I didn't take as many as they gave me anyway which today I am glad. Of course they don't work as well as they use to with the build up of tolerance. The same doc clinic ever since these benzos have been labeled almost like street drugs all docs have gotten so nervous. I was told to see a psychiatrist but no referral. The portal message quote exactly was "She needs to see a psychiatrist." That's it. I waited for referral or something. Then I looked up a doc in same provider network who though a PCP had psychiatry in his bio. I thought how perfect and the appt. showed on the portal. I went to him and he was horrible. I left crying only to have the other PCP DISMISS me for doing so in the middle of me having a trauma with my adult children (protective order which I told the doc). No matter, after 25 years at this doctor facility, I was banned. I have a new doctor and group who are independent. No urine tests, or signing a contract not to use other specified drugs like the other facility started to do. I was already anxious and depressed when they started requiring urine tests for other substances. It was humiliating. All the stress at one time put me in a terrible state. Tried therapy. Two different therapist told me that is what is happening to patients - docs get letters discouraging use and they are afraid and are dismissing those they have prescribed to patients like me. Ain't that a kicker. I'm still uncomfortable with my new doc though he understands all this. I now have PTSD when see other doctors. He said he will not stop prescribing it for me after all this time. Oh, and doctors try all forms of anti-depressants with horrible side effects (claiming no side effects) and withdrawal symptoms worse than benzo withdrawal. They gave me these when I was struggling with diverticulitis that constipated me and gave me rectal bleeding. The worst thing that could happen. I had 8" of colon removed. Insomnia is horrible long term. I'm taking lowest does of gabapentin (100mg) for neuropathy for another condition. Had lumbar spinal fusion too. At least it makes me sleepy. It's not even considered the starting dose of 300mg. I apologize for the long post.

REPLY

If I’ve learned anything from this particular thread, it’s that each person has their own tips and tricks for falling asleep. Our methods are vastly different and nothing seems to be THE answer. What works for me (playing the word game on my phone) is completely against the prevailing medical advice. And might have the effect of actually CAUSING sleeplessness in someone else. Some people fall asleep reading. For some, reading keeps them awake, etc.

REPLY

First I want to say I am sorry you are going through this. I had early childhood trauma at night so insomnia comes whenever I am feeling vulnerable or overly stressed. It is like I am on guard. I just lay there. I find magnesium glycinate relaxes me but not all brands are worth the $ so I suggest Metagenics, Xymogen or Integrative Therapeutics. Then I take 50mg Trazadone. When I get up in the middle of the night I take another half (25 mg) Trazadone. I also put some meditation apps on my phone. Calm is one and Balance is another. Some of the meditations include progressive relaxation and those really help to get me out of my head. Have you done a sleep student and a full blood test to get to some causes?

REPLY
Profile picture for mkean1250help @mkean1250help

Thank you so much. I’ve gone to the App Store and found several Calm apps.
Which are you referring to ?

Jump to this post

It is called CALM. Another is called Balance

REPLY

First, I am so sorry that you are feeling this way, mkean1250help. I get it. I have struggled with sleep for many, many years and now I take some natural herb-y things and Costco's Kirland sleep tab that help. I am not recommending what I do and it runs counter to what most folks here post. I have discovered YouTube Premium (no ads) for about $15 a month. There are MANY versions of "boring history for sleep" that last at least 2.5 hours and then rotate to something similar. My mind is VERY BUSY and I find that if listen to a very soothing voice, usually with an English accent, describing what life was like in ancient Rome or Egypt or how people lived in Medieval or Viking villages, I fall asleep within a few minutes. I keep the volume low--it's not current, it's not super interesting... hence, I search for "boring history for sleep." I also recommend a quality sleep mask. Please don't come for me, anti-TV people... this is what has worked for this insomniac. 🙂

REPLY

I know this is probably something you’ve already thought about, but do you use blue light blocker glasses when watching TV or a cell phone: Just a thought. Some people are very sensitive.

REPLY
Profile picture for jenbrown @jenbrown

First, I am so sorry that you are feeling this way, mkean1250help. I get it. I have struggled with sleep for many, many years and now I take some natural herb-y things and Costco's Kirland sleep tab that help. I am not recommending what I do and it runs counter to what most folks here post. I have discovered YouTube Premium (no ads) for about $15 a month. There are MANY versions of "boring history for sleep" that last at least 2.5 hours and then rotate to something similar. My mind is VERY BUSY and I find that if listen to a very soothing voice, usually with an English accent, describing what life was like in ancient Rome or Egypt or how people lived in Medieval or Viking villages, I fall asleep within a few minutes. I keep the volume low--it's not current, it's not super interesting... hence, I search for "boring history for sleep." I also recommend a quality sleep mask. Please don't come for me, anti-TV people... this is what has worked for this insomniac. 🙂

Jump to this post

This is a great idea. I really have never thought of this. Thank you ! Wish you well on your sleep journey too !

REPLY

I am so sorry hearing this! Horrible. Have you tried Melatonin? Any teas? It sounds like you may be depressed, are you on any anti depressants?

REPLY
Profile picture for covidstinks2023 @covidstinks2023

mkean1250help, God bless you. I am so sorry. This is a hard thing. I cannot speak from the experience you are having, but, I do have some restless nights from pain....but not nightly. Please promise me you will not do anything to harm yourself. Call the 988 number if you need help. Are you getting any counseling or have a trusted friend to talk to about this? Sometimes just talking to someone relieves so much anxiety.

Have they tried anything with you for anxiety? Sometimes Ativan (Lorazepam) is prescribed for sleep. Sometimes Trazodone (an antidepressant) is used for sleep. Have you tried Magnesium Glycinate or Calm Powder (this has magnesium in it) or Melatonin 5 mg? I take Natrol Melatonin 5 mg gummies occasionally for sleep and it works within 30 minutes for me. I also take the Magnesium Glycinate as it relaxes your muscles as well and lowers blood pressure. Are you able to nap during the day?

Here are a few suggestions:

1) Do not go on social media, watch the news, get on your phone with someone an hour before bedtime. This
winds your mind up. There is so much negativity on T.V.

2) Do not do anything that causes your mind to get over stimulated, such as balancing your checkbook before
bedtime.

3) Take a hot shower or a tub bath in Epsom Salt which has magnesium in it. It is relaxing.

4) Have you had a massage? This is very relaxing to your whole body if you can tolerate it.

5) Lavender is relaxing. There are a lot of lavender products out there in candles, etc., that help you
relax.

6) Do you have blackout curtains in your bedroom? This helps a lot of people to sleep.

7) Watch your caffeine in take at least 4 hours before bedtime.

8) I am a Christian and pray every night and read my Bible right before bedtime. This helps me to sleep as well.

I am praying for you right now and for your sleep to be sweet tonight. Please keep us all posted. Blessings & Prayers....

Jump to this post

Note on Caffeine: People react differently to it. Some it has minimal effect, other strong & slow. It on the top 10 list of allergies.

Caffeine takes 4-7 hours to get "into the blood stream" and be effective. The takes 7-11 hours to be removed. It's usually the sugar & amendments to the coffee that wake a person up the first hours.

That means that for some, that morning coffee is the reason they can't sleep at night.

Also watch out as some medicines add caffeine to heighten the body's response to the drug.

REPLY
Profile picture for minnesota10 @minnesota10

I was told after 6 (I think) sleep studies.
I have delayed sleep pattern
Which means my body don’t start shutting down for sleep until 8pm, most people start between 6 and 8pm so by 10pm they are ready for sleep. They also wake up between 6 and 8 am after 8 hours of sleep.
My body starts to shut down around 10 pm which I fall asleep between midnight and 1 am and wake up 8 to 9 am.
I feel so much better about myself because it’s my body not me.
A lot of doctors don’t know about it and don’t understand it. I was at MC.

Jump to this post

Translation: Some people are really night people -- going to bed late. 🙂

REPLY
Please sign in or register to post a reply.