Where to turn? Gastritis, Pancreatitis, IBS-C, diverticulitis, c-diff
I have been seeing the same gastroenterologist for 10 years. I have been diagnosed with Gastritis, Pancreatitis, IBS-c, I have had numerous other problems throughout the years, esophagus, diverticulitis, c-diff. I have been on every medication for Acid reflux pills, Linzess, Dicyclomine, Carofate, etc. All the diets, I'm no stranger to the lifestyle of digestive management. That being said, this year has been one of the worst I have ever been through. With Covid, everything was pushed back, and it was video visits. I had 2 edg's and colonoscopies since June. I was continuing to get worse and worse. Extreme nausea, vomiting, bloating, just very sick all the time. I still am. It's actually a lot worse.
So, my GI sends me to the surgeon. He orders tests. My esophagus tests were fine. But my gastric emptying test showed delay. They only told me that they would wait until all the tests were done. I got a message today that I have to deal with GI. No one called or explained that I now have Gastroparesis. I have been very upset with them because none of my medications I have been on for years are working for anything at all. I am dealing with all my other symptoms from all of my other conditions now too. My entire system is continuously acting up. I haven't been able to eat now at all until I absolutely have to. Even drinking water makes me sick. No one is contacting me about how to treat this. I haven't gotten any details about the results of the gastric emptying test from the 11th of December. I weighed 150.lbs on November 24th when I was in emergency and my scale reads 130 lbs. now. I'm being treated like a problem patient because I want answers and help. I don't live a life anymore. I am so sick all the time and I have no clue where to turn to. Can anyone give me some advice?
Interested in more discussions like this? Go to the Digestive Health Support Group.
May I ask what probiotic you are taking? Your smoothie recipe sounds delicious. I'll try it.
Are you diagnosed with IBS-D?
Thank you
My gastro doctor recommended I take Align. I have now been taking it daily for 3 years. I buy it at Costco when it is on sale.
Hello treesab,
Thank you for sharing that. I will try the Align and the smoothie to increase my fiber. But I'm wondering if your diagnosis is IBS-D or IBS-C? My diagnosis is IBS-D so I'm wonderng if the smoothie and the increased fiber could increase the diarrhea.
Thank you,
IF you get it again demand Dificid. Vanco makes you relapse, does nerve damage and other things. Long story but had it 6 times then Dificid. Idiots gave you Vanco!!! Going to take years to heal! Years!
Infectious med doc told me, cup of kefir and banana in morning. Plus afternoon at first year. Then went down to just morning. Forget the pills. Nothing is live in a pill.
IBS but now I eat black beans, raw apples, popcorn, real corn, red meat, salads. That’s slow healing. I thank my infectious doc, my old GI who is retired and said the guys in scrubs ruined me. Now shaking, tachycardia, Bp problems. Weak. But heck, still here and alive. Much is stress and having knee replacement which I took antibiotics and nothing happened. They gave me Ancef. .
Hello all! I have posted here before and I appreciated all the information. I am providing and update and seeking more assistance.
I was diagnosed with my third bout of diverticulitis in July 2022 and my life has not been the same since. I was given Augmentin to treat the issue, but that led to a CDIFF infection and of course, the nasty effects of it. I was put on Vancomyacin twice to treat the Cdiff and I started taking Florastor probiotic.
I still have bouts of severe diarrhea and end up in urgent care. My gastro doc has run many tests: Fecal Calprotectin (normal), CT scans ( normal), Upper GI: Normal. I had a colonoscopy 2.5 years go and that was fine. My other blood work in the past came up fine too.
I am 56, vegetarian..almost vegan with the exception of lactose free yogurt.
I do suffer from chronic anxiety and depression and will be seeing a therapist to discuss medication in a few days.
Right now I am going through another bad flare up with my IBS, second time this year. I can have anywhere from 4-6 bowel movements per day. Some are normal, some of small pieces, some are loose. I have lost weight because I keep having to have bowel movements. I feel like I have to have a bowel movement many times a day even through nothing comes out or it is a very tiny amount. So frustrating!
I have followed the Low Fodmap diet to the best of my ability and it is not very sustainable for the long term.
I am not sure what else to do as I have become very despondent over the frequent bowel movements. My gastro keeps telling me that it is chronic IBS due to the damage done by the Cdiff. I am also a CDiff carrier as I will always test positive for it even without and active infection. I do not qualify at the moment for a fecal matter transplant though I am pushing my gastro to consider. Main thing is insurance may not cover it and the gastro docs may not even do it. I have tried Levsin. It works to reduce bowel movements but I get tired from it.
Not sure what else I can do?
Do any of you amazing folks experience what I am going through?
Thank you!
RR 1967
Have you had random biopsies of your colon to test for microscopic colitis? I had a similar history - diarrhea uncontrolled, stool testing revealed Yersinia, Bactrim treatment left me with C-diff. - also treated but diarrhea persisted. I had a colonoscopy with random biopsies and they confirmed collagenous microscopic colitis. I took Two months of a steroid (Budesonide) that is effective on colon but doesn’t produce systemic effects. Voila! Diarrhea conquered.
In my case the GI doc suspects one more known medication triggers - so I cannot take PPIs, NSAIDs, or SSRIs - a price I gladly pay for the end of my 7month nightmare.
Worth asking your doc’s thoughts. There are two types of Microscopoc Colitis -Lymphatic and Collagenous. Treatment with Budesonide applies to both.
I am post Cdiff after antibiotic. Still learning. Having input from functional doctor is helpful. I take Florastor. Dairy free yogurt. Orthomolecular has several products that have been suggested. sbi and glutashield. Also make sure vitamin d level is solid. I take a tbsp of organic ground flax daily to bulk stool. I would say from experience it matters who you see and where you go. Teaching hospitals usually have a solid gi clinic with expertise in fmt.
It seems risky to have diverticulitis surgery while I still have c diff. Am I wrong about this? I would think it would be better to get rid of the c diff before surgery. Thanks for any suggestions you may have.
Speak to your surgeon about it. If you still feel concerned get a second opinion.
Will you be getting an ostomy?
What do they do in Diverticulitis surgery?? Maybe get second opinion about when you should get it if have active C-Diff .