Pineal gland tumor: Anyone have tips for managing constant dizziness?

Hello. I'm just reading your post. I've had the same symptoms of dizziness..I went and found Yoga for Vertigo on YouTube and found it was very helpful. I no longer have the symptoms

@aphrodykee, welcome. I hope you saw the helpful post from @vernepratt. I'm also tagging fellow members like @gsu @saphira @passerby @jeep @acpipes @susanaz @jammers @ah22, who have experience with pineal gland tumors and may have tips about managing dizziness.

@aphrodykee, how did your appointment go? Do you have a treatment plan? Did the Mayo team have helpful suggestions for the symptoms you're experiencing?

I have gone to many different places and drs and will continue to keep traveling until I find treatment or am homeless or dead. Otherwise the drs and neurology team can cut it out and let me go about my life. It’s really not that complicated. Cut me open like a pool noodle. Sheesh. You’d be making another living being happy.

I know that they hate making others happy. It’s basically their job to ensure that we’re all unhappy and miserable it seems but I’d like my pineal gland cyst out of my head. There shouldn’t be so many doctors rejecting me simply because I’m non cancerous. That’s a lazy bs excuse by medical and healthcare teams everywhere!

Oh i feel for you, its so hard to learn that there is limited treatment options or none at all unless certain criteria is met. truthfully, while it feels very personal i am sure its a question of what is considered good and appropriate medical care vs malpractice. their motto is do no harm. for us. my husbands brain tumor was dx'd a year ago, he did the standard care, but we knew at the beginning it was terminal. It is so deep within the brainstem, that if they attempted even a biopsy, he could have ended up alot worse (blind/deaf & no mobility) which at that point he was fully functionally, it is now 15 months later but it is slowly robbing him of any energy day by day and i feel so sad for what he has to endure. I wonder if you have tried the more reknowned programs and really had a frank conversation with them, it may not change the outcome, but maybe you'll have a better understanding of the risks. Unless, you have an insurance that would deny payment because they have a different opinion, then that is a whole other set of actions you can take if you can afford it. Good luck I hope you are able to find either a research hospital or even a group of doctors that specialize in that type of cyst.