I have 30 polyps with 2 being pre cancerous: Why?

It’s pretty stressful to have so many polyps with some being precancerous, however it’s not uncommon for some. A history of colon/rectal doesn’t always guarantee that you won’t have this issue, we can still get this but if there’s a family history then it’s more likely that you can have this problem. I’ve learned that our diets have a lot to do with it so that’s a start point to help you control it. If you get routine check ups and follow a healthy diet with lots of fibre you should see a difference.

We’re you tested for lynch syndrome?

@sbt19 I was not.

@lisarab I would get tested for that (gentic) even though you do not have any family history. Another possibility is AFAP/FAP. It is also genetic and causes formation of many polyps. Your description seems to be similar to AFAP:
https://www.mayoclinic.org/diseases-conditions/familial-adenomatous-polyposis/symptoms-causes/syc-20372443

Ty for the information,I am 57 if it is this it came on really quick,my doctor's seem unfazed my next colonoscopy is due in 2027 I'm not comfortable with any of this

With this many polyps, it is highly likely that you have a genetic polyposis. In my case, I have MAP (Mutyh-associated polyposis). It's recessive and MAP is very rare. There is no one else in my family history that has it. Please ask your doc to to order genetic testing. (I had mine thru Quest 66 gene cancer panel). Having annual colonoscopies (since my 30s); I'm now in my late 60s) saved my life and my doc knows to monitor other areas as it can cause a higher risk of other cancers. Two years ago, I had a total colectomy with ileo-rectal anastomosis (TC-IRA) All told, I had over 150 polyps removed.
3 years is too long to wait for another scope, in my opinion... I'd be happy to answer questions if you message me.

@bevjoy ty I have written to my GI today, through the patient portal requesting a sooner appointment and further testing if that doesn't get me anywhere I will try another office . This just came on out of the blue I was ok untill I hit my 50 I am 57 now ...I'm sorry for you ,I don't know how I would react if this happens to me...all I know is I would like some answers

@lisarab
Good! I've been with my current gastro for about 25 years. But, before that, I was with a gastro who downplayed not only my symptoms as a young lady, but also dismissed my polyp burden with an attitude of "you need to eat more fiber or you're doing something wrong." I guess that was what we now call medical gaslighting. When I left that practice with a recommendation to another gastro, my new (current) gastro looked at my record of polyps and said no way are we waiting for 3 years. That was 1.5 years since my last one and he removed 18 precancerous polyps.
It was actually my long standing and awesome primary doc (sole practice) who wrote the script for me to get genetic testing.

We knew that it was something genetic...people just don't get that many polyps without genetic reason. I'm glad you are shaking the tree about this. At times, we have to be our own health advocate.

I'd be happy to fill you in on more about my journey, if you'd like.

Best!

Good job advocating for yourselves! I was found to have precancerous polyps when I was in my mid-40s. Not nearly as many as you. Mine were discovered when I got diverticulitis and had a colon resection. Just a word of something to watch out for. After finding a precancerous polyp in 2022, my doctor told me to come back in 3 years. But when I tried to schedule it through my portal this year, a message was displayed saying that it was "inappropriate" for me to have one, which I learned was medical-speak for you don't need it. It turned out that their computer system automatically applied that message to my colonscopy record because I had turned 75 a year before and I guess standard protocol is to stop colonscopies at that time. I couldn't get through to my doctor (gatekeeper nurses) and so I first took screenshots of the lab report and visit summary from my last colonoscopy and contacted my insurance company who recommended I go to another GI doctor if I couldn't get through to my present one, and give them my screenshots so they could review them and also send them to the insurance company so they would pay for it. As it turned out, I talked to my new PCP and he sent an order to the GI doctor I had seen before saying that I wanted to continue my colonscopies. I have one scheduled for April. So keep advocating for yourselves, especially as you get older! Take screenshots and document everything. Good luck!

Ty I will I find the people here very very understanding,It has actually helped me feel a little better about things.I have always been the eat the cake buy the shoes take the vacation kind of person.this whole situation has changed that but I'm working on getting back to my old self....