I had my esophagus removed completely. Has anyone else had this done?

I'm female 75yo coming up on a 1 year anniver of surgery; previously had chemo/rad. I am sleeping in bed, sometimes have regurgitation if I eat too late. Eat almost anything BUT it's been slow to learn. Lost a lot of weight, but have been slowly regaining some. Playing tennis w/ other ol' ladies, ride bike occ'ly & walk some. Give yourself a BIG hug, you/we've been thru a lot and be patient.

Good morning! My husband was diagnosed with esophageal cancer in February of this year and he did 4 rounds of chemo. He had surgery in June, not he has started another 4 rounds of chemo. His last one supposed to be next Tuesday, but he is in the hospital with severe stomach pain around his navel and the bottom of his stomach. Have you ever experienced that? If so what caused it?

I experience pain when I eat too much, for example an entire sandwich, but the discomfort goes away within an hour or so. I think your husband is experiencing something different and it's good he is receiving professional care. Hping this resolves for you quickly.

Hello my name is Ronda back in 2006 I had a Heller Myotomy done I couldn't eat or drink anything so they cut the muscles to open the esophagus for 10 years I was getting my throat stretched that didn't work so they tried Botox to keep the passage opened that failed so finally in 2016 I got a Esophagectomy where they removed the esophagus they left 1 inch to attach my stomach that was 10 years ago I still didn't recover well this was the worst thing I have been through now I am very sick again they tried everything I have to sleep in a chair because I vomit at least 6 times a day so now I am heading for a feeding tube which I had after my surgery I really hated that when they change the tube it is very painful I have such a big scar on my stomach and a huge one on my neck when I tell people what I had they don't believe me i could have got surgery to cover my scars but I refused it cause it's just a part of me I call them my tattoos

If 100% of your original esophagus was removed... when your reconditioned stomach was pulled up... what did they attach it to... your ears?
I've talked with at least 300 esophagectomy patients... not a single one had 100% removed. Let us know.

Gary

@mrgvw Gary, please don’t be so short & negative especially when someone is feeling so down & looking for answers.
I think she just meant they removed her esophagus and did the gastric pull up.
I had this done as well, 2 years ago, and I tell people the simple version of “I had my esophagus removed”.
Only when asked, I go into details specifically stating my stomach was attached to my esophageal tract.
Please try to hold back your sarcasm.

@cbsmom

Noted. But I've been counseling hundreds and hundreds of my fellow esophageal cancer patients worldwide now for years... it is important for me to be sure they understand more precisely what is going on... at all stages of their EC journeys. You go ahead and counsel how you would like... I'll continue with my own methods. I've visited with my fellow patients all around the world as well... and many have come to stay in my southern California home. Be well.

@mrgvw You need to remember your not a doctor. Your counseling techniques are fair at best. You don’t know it all. If you can’t be respectful to new patients. Don’t say anything remember we’re all different!! Scott

@goldenshadow

Sorry... I must respectfully disagree. You don't like my tone... fine... I get it. But stop with the "you ain't no doctor" crap. I've been around many MDs in my life... played golf weekly with many... they each know their own specialty well... beyond that... they have no clue. And I go out of my way to bring oncologists, cardiothoracic surgeons, anesthesiologists, etc, onto our twice-weekly Zoom calls. And I've accompanied many of my fellow EC patients into their oncology and surgery consultations (at their request).

Remember... I take the time to listen and learn as the years roll by... to see how and why our many doctors focus on what they do... and to see what the oncologist knows about the surgeon... or the GI doctor... or the radiologist... or the radiation oncologist... or pathologist. Each may know their area of expertise well... but believe me, when it comes to knowing the comprehensive Esophageal Cancer journey inside and out... all aspects... it is US... us experienced EC patients who have been talking to our fellow patients for years and years... who know more. It's why I've had many doctors send their patients to our Zoom calls, or me personally. They trust us... they know how we counsel. But most of all... they know how much we care for our fellow patients and caregivers. We have the time to spend with them explaining ANYTHING they want to know about. Our doctors don't! They have too many patients they see daily... we're lucky if they can spend 10 minutes talking to us... even if it's by a Zoom or teleconference call.

I'm sure you are comfortable in what you know and how you offer counsel. Good for you. But I am too. I agree I'm not everyone's cup of tea... but that's fine. I'll live. You be well.

Gary