Concerned about the side effects of anastrozole

Posted by tinalove @tinalove, Jan 31, 2016

I completed all treatments for breast cancer but now I am supposed to take hormone blocker, named anastrozole. im concerned about the side effects. Has anyone here taken it and did anyone have hair loss?

@trixie1313

@dmgweiss
With any of the aromatase inhibitors, you won't be able to avoid the hot flashes or heat bombs as they are trying to reduce the estrogen in the body. I do the Zometa every 6 months as well and am down for about a week after then from my reaction…ugh. Living in Sonoma County (northern California) and we are having fires sweep through again. Both my kids lost their homes in the Tubbs fire 2 years ago and are just now in their homes. Between fires in Napa and Sonoma counties, please everyone pray for firefighters, pilots of planes and helicopters, dozer people, livestock, wildlife, and humans.

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Hi Trixie, I 'm so sorry you and your family are having to endure this again. We live near Concord and have all of our windows closed due to the smoke from those fires. I hope everything will be all right for you this time, and for your kids. Sending love…

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@trixie1313

@dmgweiss
With any of the aromatase inhibitors, you won't be able to avoid the hot flashes or heat bombs as they are trying to reduce the estrogen in the body. I do the Zometa every 6 months as well and am down for about a week after then from my reaction…ugh. Living in Sonoma County (northern California) and we are having fires sweep through again. Both my kids lost their homes in the Tubbs fire 2 years ago and are just now in their homes. Between fires in Napa and Sonoma counties, please everyone pray for firefighters, pilots of planes and helicopters, dozer people, livestock, wildlife, and humans.

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I am in Walnut Creek. I hope the fires get contained quickly where you are. We are getting more smoke, but that is nothing compared to being in an active fire area. I send love and prayers to you and your family.
Thanks for reframing ‘heat bombs’ for me!

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@dmgweiss

I am in Walnut Creek. I hope the fires get contained quickly where you are. We are getting more smoke, but that is nothing compared to being in an active fire area. I send love and prayers to you and your family.
Thanks for reframing ‘heat bombs’ for me!

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@sparklegram @dmgweiss
Thank you all for your kind thoughts…this is just crazy. Bad enough we get cancer, but this on top of everything else is nerve racking.

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@trixie1313

@ncgal
For me personally, the anastrozole made it so I could barely walk — between my ankles, feet, back, wrists, and hands it was horrendous. I was next placed on letrozole for which the pains was not quite as bad but gave me migraine headaches. Following that I was placed on exemestane and that had been much, much better. For the hair I read articles on Mayo about women taking biotin for my thinning hair and believe that has helped somewhat. Best of luck to you.

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Thanks, Trixie. I'll look into the biotin.

Liked by trixie1313

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@ncgal

I started on Anestrozole in December of 2019 after my last breast cancer treatment. In late January I started to get muscle and bone aches so bad that I could hardly walk. I had a follow up appointment with my radiologist and mentioned it to her and she suggested that it might be the Anestrozole. I called my oncologist and he suggested I stop taking Anestrozole for two weeks to see if that helped. It didn't! The oncologist suggested that I see my regular GP who took blood work and s aid that I was just anemic. He sent me to a neurologist who did additional blood work and found out I had Polymyalgia Rheumatica, an auto-immune disorder. He sent me to a Rheumatologist. By now, this was April so I spent 4 months in pain. The day the rheumatologist put me on
10 mgs of Prednisone the pain stopped in it's tract. We still don't know the cause and I have flare-ups where I have to again increase the Prednisone. I don't know if the Anestrozoe caused these symptoms or if they came from somewhere else (some say stress as we have had a rough year with both my husband's health and mine). I started back on Anestrozole after the two week hiatus and the only problem I am presently having apart from PMR is hair loss. I lost all my hair during chemo for breast cancer but it came back thick and curly, only to go straight and limp a few months later. Now I seem to be losing more and more of it with patches in my scalp without hair. I have tried all the Keratin sprays and Keranique shampoos but nothing helps. Any suggestions would be appreciated if you have found a way to strengthen and help growth of hair.

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When my hands hurt so much on anastrozole – my oncologist sent me to a Rheumatologist to make sure it was not something else causing the pain. There was not. I switched to Exemestane & it took like 3 months for my hands to stop hurting. So it takes longer than 2 weeks to get that anastrozole out of your system. My pain is only about 0 or 1 these days. Before it was a 7. My hair thinned but never felt out. I did not take chemo. Have you tried Rogaine? My oncologist told me to try it. When I was trying to grow my hair long (years ago) I used pre-natal vitamins that my hair dresser recommended,. I swear it worked – or maybe it was a placebo! 🙂

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@sparklegram

Hi Trixie, I 'm so sorry you and your family are having to endure this again. We live near Concord and have all of our windows closed due to the smoke from those fires. I hope everything will be all right for you this time, and for your kids. Sending love…

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@sparklegram @dmgweiss @trixie1313
The four of us appear to be living in the same general area. When the fires relent, and the virus subsides, we need to get together for lunch and share war stories. We are more than cancer survivors!

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@elizm

@sparklegram @dmgweiss @trixie1313
The four of us appear to be living in the same general area. When the fires relent, and the virus subsides, we need to get together for lunch and share war stories. We are more than cancer survivors!

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@elizm
Sounds good to me! The area in the city next to me is now in a warning zone. Praying this comes under control soon.

Liked by elizm, lisman1408

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@elizm

@sparklegram @dmgweiss @trixie1313
The four of us appear to be living in the same general area. When the fires relent, and the virus subsides, we need to get together for lunch and share war stories. We are more than cancer survivors!

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That sounds great! Can’t wait for more ‘normal’ times.

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@trixie1313

@elizm
Sounds good to me! The area in the city next to me is now in a warning zone. Praying this comes under control soon.

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@trixie1313… I hear ya. All my friends in the Santa Rosa area have evacuated already. We'll soon need treatment for PTSD….

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@ncgal

Thanks, Trixie. I'll look into the biotin.

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Be aware that biotin will mess with any thyroid test, and can skew the results either way (too high or too low). Make sure you tell your doc before a thyroid test. Otherwise you might go down a rabbit hole trying to figure out what is wrong with your thyroid!

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@chamisa

Be aware that biotin will mess with any thyroid test, and can skew the results either way (too high or too low). Make sure you tell your doc before a thyroid test. Otherwise you might go down a rabbit hole trying to figure out what is wrong with your thyroid!

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@chamisa
Thanks for that reminder. I had seen that on other posts. I've stopped taking that last week as I'm having a PET scan in a few days and didn't want to chance messing that up. Hoping the lesion they saw on my lung goes magically away.

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@trixie1313

@chamisa
Thanks for that reminder. I had seen that on other posts. I've stopped taking that last week as I'm having a PET scan in a few days and didn't want to chance messing that up. Hoping the lesion they saw on my lung goes magically away.

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@trixie1313 Good luck on the PET scan, Trixie. We'll be rooting for you!

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Give us a T! Give us an R. Give us an I. Give us an X. Give us an I. Give us an E. TRIXIE!!!

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@sparklegram

Give us a T! Give us an R. Give us an I. Give us an X. Give us an I. Give us an E. TRIXIE!!!

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@ sparklegram @trixie1313
Yesssssssssssssssssssssssssssssssss

Liked by trixie1313

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@trixie1313

@chamisa
Thanks for that reminder. I had seen that on other posts. I've stopped taking that last week as I'm having a PET scan in a few days and didn't want to chance messing that up. Hoping the lesion they saw on my lung goes magically away.

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Keep us posted, Trixie. We're all thinking of you.

Liked by trixie1313, elizm

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