Mayo Clinic Connect
I completed all treatments for breast cancer but now I am supposed to take hormone blocker, named anastrozole. im concerned about the side effects. Has anyone here taken it and did anyone have hair loss?
Liked by Dee, coquimti, Molly MIller, farmgirl1556 ... see all
bressie, i was on Arimidex for almost 2 years. I quit a week ago because I simply can't take the side effects. My doctor has prescribed Exemestane. I'm hoping I can tolerate it better than the other. Like you, I'm in my 70's (I just turned 75) and quality of life is important! I will continue taking the meds for the 5 years. i don't want a recurrence, so…fingers crossed!
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Did you doc offer up Tomoxifen ?
Yes ive been on arimidex for 3mo my hair has gotten thin but but started biotin and its coming back but its very fine. Its thd extrene exhaustion thats gettibg me down as wrlk as muscle weakness. I was extremely active before and at 70 all my dr. Say i dont act that old nor look that old. Well now i feel like 90 and i have 4.5 years to go. I had hrp1 grade 1 non aggressive all lymph node clean cancer was smaller than a cheerio no chemo no radiation. I wonder if this is realky necessary. All kinds of female issues i didnt have before. Maybe you will be among wonen who have no side affects
@bressie I am 65 and tried 2 different meds and decided with 4 grandsons and a life of moving around I could not handle that kinda quality of life!
My BC was 1A hers negative, pro+, er+ 2 lymph nodes nothing in them or marginal tissue, 20 radiation treatments, and a hysterectomy
You can do it!!
Decide what you want to feel like and the quality of life!!!
Why don’t you try Tamoxifen – less side effects
I dont fit into the catsgory. I was just diagnosed in july had a lumpectomy to remove the cancer smaller than a cheerio abd only my estrogen receptor was 1. No radiation or chem needed and all lymph nodes and edges were clean.
I would like to stay in touch with you to see how you do. Does insurance cover it. I have united health care and medicare. Ill keep you in my prayers. Keep me posted wish you the very best us old gals need to stick together
Liked by lisman1408, sparklegram
@sparklegram I've been on the exemestane for about a month now. Still having some bone pain, but not severe and all over like with the other two AIs. Have a few hot flashes, but nothing like when I had surgical menopause. I do take my pill at night time so that may help alleviate some of the hot flashes, possibly going on while I'm sleeping because I will wake up with sweats. I do get insomnia..go to sleep and wake up 1-2 hours later and can't sleep. I keep my Nook near me so when I can't sleep, I just read for 1 or 2 hours and then fall back to sleep. The fatigue from all three is rough, but I'm dealing better with it from walking and therapeutic water exercise. For me, after trying out all 3 aromatiase inhibitors, the exemestane seems to be tolerable.
@trixie are you taking anything for your hot flashes?
@gwinter I underwent surgical menopause at age 44 (removal of uterus and ovaries). It was brutal. At that time they gave us estrogen pills twice daily which helped immensely but then the Women's Health Study came out and that was stopped. I think back then my Gynecologist gave me some sort of psych pill for a short time, but I don't remember the name. I do take my aromatase inhibitors at night and will awaken with sweats, but daytime hot flashes are minimal then. They tend to start about an hour after I take my pill. I stay away from alcohol as that tends to start them off more. I've also upped my exercise doing water time and a lot of walking. I think staying active helps a lot. With the fire here in northern California, I have both of my kids' families and animals living with us so am doing a LOT of cooking and baking and having huge hot flashes…I have one of those little fans that hand around your neck and it helps immensely!
Liked by elizm, kathyomaha55, sparklegram
@trixie I am taking nothing as far as AI, but had a hysterectomy February this year. Oh boy do I have days and nights! Tried all the special jammies, too! Getting very very old!
Stay safe and keep on baking!! Hugs!
Liked by trixie1313
@gwinter Good thing your ovaries weren't removed….you'd be in a worse pickle! These things do help: https://www.bedbathandbeyond.com/store/product/o2-cool-reg-deluxe-necklace-fan/3293693?keyword=neck-fans
@tricks yep had a total hysterectomy and oophrectomy(sp)…I think that's the hot flash problem!!
Due to cells in tumor next place cancer would have gone was ovary (I had one removed when I was 19)
Liked by kathyomaha55
If you're online right now, please hop over to see this live presentation by Dr. Dawn Mussallem, a diagnostic breast specialist, on achieving optimal well-being through diet, exercise, and stress management, followed by a Q&A session for which Dr. Mussallem will be joined by these specialists:
– Kristin Lothman, MSW, LCSW, Mind-Body Counselor
– Dr. Raul Rosario Concepcion, Physical Medicine and Cancer Prehabilitation
– Debra Silverman, MS, RDN, LD/N, Integrative Cancer Nutritionist
Click this link to watch live or to see the archive any time: https://connect.mayoclinic.org/webinar/video-qa-about-breast-cancer-survivorship-care-planning/
Liked by cfacarol
I thought my hot flashes got worse with the anastrozole. But they are better now than the first 4 months. Dead of winter & I was only sleeping with 1 sheet on me! Doctor is switching me to Exemestane – but that's to see if the hand pain will ease. I sure hope it's better.
@gwinter That will do it! Yikes, aren't we the lucky duckies that get to experience this not once but twice?!
@kathyomaha55 My daughter-in-law has seen the improvement since my switching to exemestane as with the other two AIs, the heel pain made it difficult to get up from a seated position to stand and walk as well as hand, leg, and elbow pain. Sure do hope it goes better for you as it has with me.
@kathyomaha55 when I was anastrozole, in one day I had 62 bouts of hot flashes and the following day for just a few hours I would say I had suicidal thought. Thank heavens I knew what was up (due to reading these blogs and the most wonderful pharmacist) and called the Dr
Horrendous feeling of loss of control!
Liked by elizm
Bressie, I'm happy to stay in touch. I started the exemestane on Monday October 28th, 2019 so it's too soon to tell about side effects. With my Kaiser insurance I always pay $5.00 per RX of any pills. Yes! It helps to chat with other "old gals"!
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