Mayo Clinic Connect
I completed all treatments for breast cancer but now I am supposed to take hormone blocker, named anastrozole. im concerned about the side effects. Has anyone here taken it and did anyone have hair loss?
Liked by coquimti, Molly MIller, farmgirl1556, kathyomaha55 ... see all
Thank you for the info. Every little bit of info helps. I can't say I'm still not afraid but I guess I've been living in this horrible veil of fear for about 9 months now since I found out I had bc. Does that ever ease off or go away?
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I can't say the fear in the back of my mind goes away – but I try to fill my time with other activities, that distracts me from dwelling on it. I'm retired now – but have lots of hobbies/activities. I'm choosing to stay positive and knowing 85% of all BC is "CURED" these days helps. Thank goodness for all the new and improved treatments. I also have a friend who is a 21 year survivor. Some days it does not even cross my mind. Worry is a thankless activity. It took me decades to learn this – as my mom was a dedicated worrier. I guess I saw the toll it took on her and I have decided not to go down that path. I know that's sounds easier than it is. Stay strong.
Liked by oilermama, ckf1317
I take arimidex and have body aches but just try to ignore them. I have had a really complex broken wrist where even specialists could not fix properly and after 2 weeks was sent to a large metro area to completely redo the surgery to fix it. 3 surgeries were necessary. I do now have osteoporosis and likely from the cancer medication. Who knows when I'll get off it I've been on it for over 10 years but better that than cancer.
I have bone and joint pain but I'm 81 years old and don't know if it's worse because of the Arimidex. I also take Boniva and for at least a week afterward I have bone pain. I don't really notice any other after effects, though I had crying jags from out of nowhere the first few days after I started taking it. That's what brought me to this group! They're gone now.
I have been struggling with pain from the anastrazole as well. Fortunately, I was able to see a physical medicine and rehabilitation doctor last week; he specializes in pain related to cancer meds, etc. He had lots of good suggestions. One was a medication change. A second one was a series of exercises and a referral for physical therapy. Another was to take LOTS more vitamin D — which makes sense since during the winter we have almost no sun in Michigan. I can't believe how much better I feel after just a week with his input. If you have a doc like that as an option, it might be worth pursuing. Best wishes to all — this continues to be quite a roller coaster. Sometimes it's as if they forgot to put the safety bars on the cars.
Liked by farmgirl1556
Great advice!!! Guess I’ll start it!!! Was on tamoxifen for 4 years😝
Try Vitamin D3 Oil – it helped me a LOT. At least 2,000 units a day. The Oil is absorbed better.
Have been taking arimedex for 7 months and surprised that so many women complain about joint pain associated with the drug. My only complaint is thinning hair and fatigue. My question is: do the symptoms of joint pain begin immediately after starting the drug or after taking it for a long time?
Speaking only for myself (and my Cancer Community Peer Group), those of us who experienced joint/muscle/bone pain from anastrozole, began experiencing it during the first 2-3 weeks….
Liked by farmgirl1556, kathyomaha55
Actually I felt great until 2 and a half months on it. Started it on October 1 and pain kicked in late December. Joint, muscle and bone pain also the bottom of my feet. Today I feel pretty good..go figure.
Liked by Molly MIller, farmgirl1556
I’ve been taking anastrozole for 15 months. My oncologist told me to keep moving. I don’t have any issues. I walk everyday.
Liked by Molly MIller
Thank you! Every little bit of information helps. I try to keep moving too. I try to walk a mile every day on my treadmill, and I think it helps. I live in a cold and snowy area so being outdoors isn’t feasible right now, though I do love to be outside!
I had a mastectomy of my left breast last week. I had been on Anastrozole for 6 months prior as part of a clinical trial to reduce the tumor (it didn’t). I am now off it for a month, which I am calling my honeymoon. I feel amazing. The drain sites are annoying but I haven’t had to take any pain relief. I know I have to start the Anastrozole again soon, but I’m not looking forward to it. I still need my right side mastectomy so it’ll be after that
Did you have side effects from the Anastrozole? If so, what were they?
I have been on Anastrozol since November 2018. So far my side effects have been mild. Some back soreness, some fatigue. A few times I had tingling of my fingers and a brief dizzy spell( on the very first day of taking the Anastrozol). Staying active helps a lot.
Welcome new members (Jan 2019) @kathyomaha55 @sandrajo @jeannie53 @huey @lisman1408 @baker1 @karendb I hope I didn't miss anyone.
I want to invite you to a Video Q&A happening next week Wed, Feb 6, 2019 from 9:30am to 10:00am Central time zone. See details here:
> Video Q&A about Women's Cancers https://connect.mayoclinic.org/webinar/video-qs-cancers/
Given the broad topic "women's cancers", I doubt the session will address symptoms of aromatase inhibitors, but may be of interest. You can also see all past webinars archived here: https://connect.mayoclinic.org/webinars/ Simply use the search term "breast cancer" to find specific videos.
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