Concerned about the side effects of anastrozole

Posted by tinalove @tinalove, Jan 31, 2016

I completed all treatments for breast cancer but now I am supposed to take hormone blocker, named anastrozole. im concerned about the side effects. Has anyone here taken it and did anyone have hair loss?

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@cautiousoptimism

I have been taking arimidex for 8 months since dx of lobular carcinoma. I have many side effects, including hair thinning. Has anyone else experienced this? Will I eventually lose it all?

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I’ve been on anastrozole since 7/16/22, my hair is so thin on top. I’m going to my dermatologist in March 23 and will inquire about the low dose oral minoxidil

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I have been taking Anastrozole for 10 months. My biggest concern is progression of my osteopenia to osteoporosis and elevation of my cholesterol levels. Like others have mentioned my aches have been kept in check by lots of walking and strength training. I even took off the extra 20 lbs that I was carrying when diagnosed. If the cholesterol keeps creeping up despite diet and exercise then I need to consider if a risk for cardiac event or stroke outweighs the risk for BC recurrence.

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I’ve been on Anastrozole for 3-1/2 years now and will continue until the 5 year mark.

For the first few months I had a few aches and pains in my hands and feet. Since then, I’ve had no side effects.

I do walk a lot, stay within a normal weight for my height and try to eat a healthy diet.

We all experience AIs differently. ♥️

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@hopeful64

Wow! thanks so much for sharing. I have been on Anastrozole for about 7 months. I recently just started having aches in my wrist where I could barely move it without pain. I thought it was just the sign of getting old ( I am 64) . However the joint pain has been increasingly worst. I too exercise and walk, which seems to help.

What is almost unbearable is the anxiety and depression. Is anyone else going through this?

Note: I am new to this site and I honestly never thought I would participate. But after reading many of your stories it has really helped me a loth. Thank you all!

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@hopeful64 Not everyone has side effects from Anastrozole. If some have them, they are all different. We must listen to our bodies. I took Anastrozole for 2 1/2 years. What happened slowly was that my hip joint was hurting, I thought, Oh I've done something to overstretch it. Then an overall cloud throughout me started. It was slow, but I was noticing differences. I started paying attention to ME. Then I got a trigger thumb and started looking things up. Trigger thumb/fingers are a side effect. My oncologist said 'oh no it couldn't be that", I got a thumb brace and it went away after a few weeks. Then things progressed that I could hardly walk and get in and out of the car. I felt 80+ years old. I just turned 70. I stopped the Anastrozole 8 months ago and I feel like a million bucks. Back to exercising, yoga, walking (with a lift in my step), my outlook is great. I'm BACK!! 2 1/2 years is better than nothing I am and always have been active and living pretty healthy so all is good for me. I have my screening done every 6 months (MRI & mammogram) plus my physical exams with oncologist and surgeon. My Quality of Life is very important.
Pay attention to your body, it will talk to you. Talk to your doctor and be proactive with what you have to say to him. My oncologist just did not listen to me. He has since retired and I will be seeing a new on this February. Good luck Hopeful64. Stay strong and vigilant and do what is good for you.

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I have been on Anastrozole since May 2022. I have only experienced neuropathy in both hands, it is annoying but not painful. I haven’t had any issues with hair loss due to the medication. I agree with what others said about trying it to see how it affects you since everyone responds differently regarding the side effects they may experience.

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@marcia115

HOPFFUL64
I am 81 and I am to go on anastrozole but I have not heard one good thing
about it. I also heard that when this person stoped taking the pill for 5 years
she got breast cancer again. I don't want the pains in my arms and legs and for
sure I don't want depression. I may just forget the pill.

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I’m on month 9 of Anastrozole and I do not experience any intolerable side effects. I have Mild joint pain eased by stretching and walking.

If you have hormone positive breast cancer and your oncologist recommends anti hormone treatment why not give it a try before rejecting it outright? You may not experience any unwanted effects.

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@marcia115

HOPFFUL64
I am 81 and I am to go on anastrozole but I have not heard one good thing
about it. I also heard that when this person stoped taking the pill for 5 years
she got breast cancer again. I don't want the pains in my arms and legs and for
sure I don't want depression. I may just forget the pill.

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@marcia115 many of the women I know, myself included, did not have significant side effects with these meds. I found that walking more than 20 minutes helped. I did 5 years and wanted to do 7 but a test then showed no further benefit. I actually miss it!

I personally think it makes sense to try it since the experience seems to vary so much from person to person.

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I started taking 1 mg tablet of anastrozole in October of 2022. I take it at night because I worried about nausea. I have some shoulder and wrist pain but I have osteoarthritis and my rheumatologist says it is likely tendinitis or bursitis. I am 67 and was diagnosed with ADH. Taking anastrozole to prevent breast cancer. I try to walk 4 to 5 miles daily. I haven't had the side effects that many people complain about and I hope that continues.

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@windyshores

Yes for hormone-positive cancers, hormonal meds are recommended. You do not remove all risk by removing breasts.

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That is very true, I was told that by the doctor. I have had the surgery now I have
radiation. hope that will be my fix. I had it on my left breast took radiation 9 years ago
did not take the pill. this one is the right one. completely different.

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@hopeful64

Wow! thanks so much for sharing. I have been on Anastrozole for about 7 months. I recently just started having aches in my wrist where I could barely move it without pain. I thought it was just the sign of getting old ( I am 64) . However the joint pain has been increasingly worst. I too exercise and walk, which seems to help.

What is almost unbearable is the anxiety and depression. Is anyone else going through this?

Note: I am new to this site and I honestly never thought I would participate. But after reading many of your stories it has really helped me a loth. Thank you all!

Jump to this post

HOPFFUL64
I am 81 and I am to go on anastrozole but I have not heard one good thing
about it. I also heard that when this person stoped taking the pill for 5 years
she got breast cancer again. I don't want the pains in my arms and legs and for
sure I don't want depression. I may just forget the pill.

REPLY
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