I am desperately hoping to get help for, not pe

Posted by loa80 @loa80, Jan 16 9:10am

I do not have peripheral neuropathy. I have length dependent, sensory motor, axonal, chronic polyneuopathy. The pain started in my left foot and is now in my right foot. I have been to several doctors only to hear “there’s not much you can do with neuropathy “. The last doctor was a Neurologist at University of Alabama. She did skin biopsy and needle .
She told me the diagnosis and that there is no treatment. The pain is intolerable. Support socks, shoes, Lidocaine patches, Tylenol, Ibuprofen, Lyrica, Cymbalta, Epson Salt soaks are not helping. The only time I have relief is in bed, with feet elevated. HELP PLEASE I am not ready to live in bed.

Interested in more discussions like this? Go to the Neuropathy Support Group.

blowerk1216 | @blowerk1216 | Jan 18 7:24pm

In reply to @loa80 "No I have not, but will check it out. Thank you" + (show)

@loa80 you are very welcome 😁

debbiehirsch | @debbiehirsch | Jan 19 10:12am

Quetenza did not work for me and burned my legs for one month. I was in worse burning pain from the Quetenza so I don’t recommend that at all. Cymbalta is another medication that I take at night to help with pain. It’s an antidepressant but I pros for nerve pain. It takes about one month to work.

Justin McClanahan, Moderator | @JustinMcClanahan | Jan 19 10:53am

In reply to @blowerk1216 "@mrmacabre I don’t believe that big pharma want you to think that so they can make..." + (show)

@blowerk1216, it is advised to discuss any and all supplements or medications with your provider.

Mayo Clinic Connect is a place for patients to share their experience to help the make better treatment decisions with their providers. Offering medical advice goes against the Community Guidelines.

loa80 | @loa80 | Jan 19 11:33am

In reply to @debbiehirsch "Quetenza did not work for me and burned my legs for one month. I was in..." + (show)

@debbiehirsch

Thank you….I have taken Cymbalta several years….

proteusx | @proteusx | Jan 20 12:25pm

In reply to @debbiehirsch "Quetenza did not work for me and burned my legs for one month. I was in..." + (show)

@debbiehirsch where on your body and how was the Qutenza applied?

blowerk1216 | @blowerk1216 | Jan 20 4:40pm

In reply to @blowerk1216 "@mrmacabre I don’t believe that big pharma want you to think that so they can make..." + (show)

@blowerk1216 this is what I am using currently

debbiehirsch | @debbiehirsch | Jan 22 6:35am

In reply to @proteusx "@debbiehirsch where on your body and how was the Qutenza applied?" + (show)

@proteusx
On my legs and feet. Horrible experience

proteusx | @proteusx | Jan 22 11:52am

Sorry to hear it. Was this applied as an ointment or a patch? Qutenza is a prescription patch FDA approved only for the diabetic foot and has been quite effective in many people. It has to be applied by a doctor and is typically applied every three months for a year. Interestingly, non-prescription capsaicin ointments in far lower doses/ concentrations causes far more burning and discomfort than Qutenza which, in most, is pretty well tolerated.