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I am a support group leader for psp aka supranuclear palsy

Posted by afoster80 @afoster80, Mar 17, 2016

I am a support group leader for psp aka supranuclear palsy...would appreciate any feedback, help we can use for this disease...

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Moderator
Colleen Young, Connect Director | @colleenyoung | Mar 22, 2016

Hi @afoster80, welcome to Connect.
I'd like to hear more about your support group and your role as a leader. What kind of feedback or information are you looking for? It will help me connect you with other people familiar with this disease.

REPLY
wiens1 | @wiens1 | Apr 13 5:40pm

I was diagnosed on Nov 15/23
I was told no cure for the disease but I could join the trial clinic in the spring.

it hasn’t happened yet. I am Canadain and winter down in Yuma so am home now. Any ideas when the trial clinic is going to happen.

REPLY
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