Hysterectomy what to expect afterwards?

Before my hysterectomy I consulted an Oncologist she is the one that told me I needed the survey. I asked her about the conservative approach which is the IUD with the hormone. She said that's for younger women who want to preserve their fertility. So basically telling me that I had no choice but a hysterectomy. After the horrific surgery I went to the hospitals portal where the surgeon describes the procedure and adds her notes. That's when I read what the oncologists wrote that the IUD with the hormone progestin would have been "highly successful". No mention of age!! I was devastated when I realized she lied to me. Also the specialty blood work the oncologist took was all within range. She knew I didn't have cancer yet lied to me to freighten me into an unnecessary hysterectomy.
That's my experience so please get a second opinion. So you won't feel the way I do.

@meandmrsjones, you asked about virtual appointments at Mayo Clinic. Mayo Clinic welcomes both new and existing patients for virtual and in-person care, including elective surgeries, in adherence with federal and state executive orders and guidance. Video and phone visits can be great options for appointments before, after or in place of face-to-face care. Appointment coordinators will recommend a virtual visit if it best fits your individual needs. Here is more information and how to get started with submitting an appointment request: http://mayocl.in/1mtmR63

Sophie I am so sorry you are feeling that way, and I understand and hear you. On the one side, what if it had been cancer? My doctor explained to me that if they don't take lymph nodes, and cancer is found, then you may have to go back in for another surgery. Reading on the Mayo website, it sounds as if they do the pathology asap while you are in surgery, then determine whether to take the nodes are not. I hear you and understand your concern. I am questioning whether to let them take my ovaries as she recommended. Thinking of getting a second opinion through Mayo but not sure if my insurance will allow it and if they do virtual appointments as they are five hours from my home. Also, I am thankful no cancer was found in you. If it's any consolation, with the condition we have, I did read a research paper that found that the pre-cancerous cells can develop into cancer in a median 59 days, so that was not a great stat either.

you are right, and thanks for the reminder, that at the end of the day it is our choice. Based on the statistics, I felt a sense or urgency in my own situation. My doctor is recommending ovaries being removed too, and that is giving me some pause now that I am doing some research, but so hard with the way our insurance is to get a second opinion, esp. when time is of the essence.

@meandmsjones.

I responded to a note from @sophiem77. It's an individual choice on what treatment to follow since endometrial hyperplasia with atypia is a "pre-cancerous" condition. Although I'd want to make a decision quickly I think it would be better to get all the information I could - including reading and perhaps a second opinion - and then make a very informed decision.

@sophiem77. My understanding, from reading, is that a endometrial hyperplasia with atypia raises the risk of developing endometrial or uterine cancer. If a woman is perimenopausal or postmenopausal I can see why a hysterectomy would be recommended. It's always the patient's choice what she wants to do.
Here is some information from Cleveland Clinic.

-Endometrial Hyperplasia
https://my.clevelandclinic.org/health/diseases/16569-atypical-endometrial-hyperplasia

Gm I am home got home around 7 pm. Had to be at hospital and register in 5:30 am and appointment was for 5:45 am , got back to my room about 12. Left around 5:45 last night after I was good to go from Anesthesia and I ate and drank and pisses. They took both ovaries and the Fallopian tube my uterus and my cervix and lymph node on each side left my vagina. The Doc said the lymph nodes looked good but will know once they are checked out by who ever does that. If no cancer in them just have to go back for checkups and if they shoe cancer then some radiation. Doing ok my pain is about 3 not to bad . No to cough that hurts lol, been up walking already this morning . Now it’s the healing process and getting back to being me, doing the things I was doing before all of this happened. Rochester Mayo Clinic is the best. I got excellent care yesterday and my Doctor she talked to me before I went to sleep reassuring me all will be good after surgery. They care for their patients. On a scale from 1 - 10, I give them a 10+

Yes, they did a sentinal lymph node biopsy. Its removing one lymph node on each side. But I feel that I got over treatment. My organs were removed and there was NO cancer found. I feel that I should have done the IUD with the hormone progestin as first line of treatment. I am very regretful of undergoing a hysterectomy.

Sophie I am sorry that you are going through this. I just received the same diagnosis this past Monday and have surgery scheduled for Oct 17th. I am told that the reason they do this is that 40% of patients have underlying cancer. I am terrified, and also frustrate to wait a month to have my surgery, knowing cancer could be there. Were you also told they will remove lymph nodes during the surgery?

@cheriels Yes, you will be well cared for next week. Hugs to you, my friend.