1. < Osteoporosis & Bone Health

Hyperparathyroidism caused osteoporosis--now what treatment?

Posted by sebutler @sebutler, Dec 24, 2024

I had hyperparathyroidism for 10 years before my doctor noticed (!!), and as a result developed severe osteoporosis. The parathyroid problem has been fixed (with surgery), and I've been on Tymlos for a year, with no side effects, thankfully. My rheumatologist usually keeps patients on Tymlos for 2 years, then moves to Reclast for 3 years. I am terrified of taking any bisphosphanates, since my teeth are really bad and I could possibly need an extraction in the next year or so. Has anyone had osteoporosis due to hyperparathyroidism? I'm wondering if, now that my PTH levels are normal, maybe my body will start developing new bone on its own and stop resorbing bone. So maybe I don't have to go on Reclast???

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sebutler | @sebutler | 6 days ago

Thank you for this information!!

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SusanEllen66 | @SusanEllen66 | 4 days ago
In reply to @firef1y "Go on Youtube. There is a mountain of information on the parathyroid glands (4 glands 2..." + (show)
@firef1y

Go on Youtube. There is a mountain of information on the parathyroid glands (4 glands 2 B exact). What I've learned is that if there is a tumor, it may or may not show up on a scan. There was one surgery where only 1 turmor showed on the scan, the 2nd tumor was hiding. It's a 15 minute day surgery with about a 1" incision. I wish this site would allow links bt it doesn't. Go to youtube.com ... ALWAYS BE PREPARED B4 MEETING W/UR DR. WITH ALL SURGERY THERE R RISKS. The vocal chords are very close to the parathyrid glands. This is the video U will want 2 C ... Parathyroid Operation: State of the art Surgery in 13 minutes by NORMAN PARATHYROID CENTER ... Some of the symptoms I've had for years bt those symptoms mimic other possibilities as well. Best blessings on your journey ...

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@firef1y
I had my parathyroid surgery done in 2008 in Tampa by Dr. Norman.

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2 replies
gently | @gently | 4 days ago

The clearest information I've found is on Dr. Norman's website. https://www.parathyroid.com/MIRP-Surgery.htm

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firef1y | @firef1y | 4 days ago
In reply to @SusanEllen66 "@firef1y I had my parathyroid surgery done in 2008 in Tampa by Dr. Norman." + (show)
@SusanEllen66

@firef1y
I had my parathyroid surgery done in 2008 in Tampa by Dr. Norman.

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Are you feeling any different since you had surgery? I've heard others Express how much better they feel overall. Thanks for posting. Happy New Year!!

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1 reply
firef1y | @firef1y | 4 days ago
In reply to @SusanEllen66 "@firef1y I had my parathyroid surgery done in 2008 in Tampa by Dr. Norman." + (show)
@SusanEllen66

@firef1y
I had my parathyroid surgery done in 2008 in Tampa by Dr. Norman.

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I just read the attachment. Very interesting and very informative. Thanks again for posting 📫 ☺️

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SusanEllen66 | @SusanEllen66 | 2 days ago
In reply to @firef1y "Are you feeling any different since you had surgery? I've heard others Express how much better..." + (show)
@firef1y

Are you feeling any different since you had surgery? I've heard others Express how much better they feel overall. Thanks for posting. Happy New Year!!

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@firef1y I felt light years better 2 days after surgery.

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firef1y | @firef1y | 2 days ago

Ms. Susan, thank you. A blessed New Year to you and all! MJ

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