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vickie53
@vickie53

Posts: 6
Joined: Aug 23, 2018

Hx FAP, resection at 10. December 2017 GERDS 24/7. Meds not helping.

Posted by @vickie53, Thu, Aug 23 4:37pm

FAP with resection at 10,ileum pullthru at 23, tumor Ampulla 41, EGD 2018 with polyps from stomach to end of small intestine. MAIN problem looking for help with
Acid reflux.It is 24/7 since December 2017.I have been on protonic,carafate, dexilant all at same time with no relief. I tried GI Encaps,probiotics 50 billion and 16 strains, digestive enzymes. I am considering the LINX procedure when I switch to Medicare G the 1st September. I have an extensive health history.My other insurance has left me with numerous bills. Will be 65. I have questioned whether I should go to Mayo or what to do.I have developed 75 food allergies so I try to do chicken soup, oatmeal, potatoes and eggs. But also allergic to these foods. Drink water. I am suspicious I have low stomach acid since I did a baking soda test. They say cold stops secretion of acid. I am at a loss what to do.I am so tired of this. I would like to lay flat one night and sleep more than 4 hours at 2 hour intervals. I have IBS with bile stools 5 minutes after eating or taking pills. Any suggestions?

REPLY

Hi, @vickie53,
Welcome to Mayo Clinic Connect. Since many of your health concerns fall into the Digestive Health area, I've moved your post to that group where I think you will meet others who've experienced similar situations.

If you'd like to go to Mayo Clinic or at least look into it, I'd suggest going to this page, https://www.mayoclinic.org/appointments, where you will find information about how you can request an appointment by phone or online.

Of the various concerns you mentioned, which is the one you'd most like input on? What question would you most like answered about that concern?

@lisalucier

Hi, @vickie53,
Welcome to Mayo Clinic Connect. Since many of your health concerns fall into the Digestive Health area, I've moved your post to that group where I think you will meet others who've experienced similar situations.

If you'd like to go to Mayo Clinic or at least look into it, I'd suggest going to this page, https://www.mayoclinic.org/appointments, where you will find information about how you can request an appointment by phone or online.

Of the various concerns you mentioned, which is the one you'd most like input on? What question would you most like answered about that concern?

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Continuously burning of esophagus.

Hi, @vickie53 — yes, I can imagine that would really hurt to have your esophagus continuously burning.

I'd like to introduce you to some other members on Connect who have talked about burning or other unpleasant sensations in the esophagus, like @kozlo52 @craig7 @waterboy @windwalker @kdubois. I'm hoping they may have some input on the constant esophageal burn, and perhaps they will also have some thoughts on the medications not helping, the difficulty getting sleep and the LINX procedure you are considering.

@vickie53 – have you found anything that brings even temporary relief to the burning feeling?

Lisa, I am not a Dr, or medical professional, and the only experience I have had is a 3 mm hiatal hernia, 4 inch segement of Barrett's, multiple RFA treatments (the first was the worst… burning 3 microns of esophagus for 360 degrees over 4 inches… it wasn't the time to go to KFC for some extra crispy.
Most of this was done at UW Madison clinics, Last time I went to Mayo's Barrett's clinic…. a good move.

I had not heard of LINX. I had a fundoplication 9 years ago. I also have gastroparesis and esophagitis. I’m scheduled for a G-POEM procedure at Emory 9/27. I will look into LINX at Emory. Best of luck to you.

@lisalucier

Hi, @vickie53 — yes, I can imagine that would really hurt to have your esophagus continuously burning.

I'd like to introduce you to some other members on Connect who have talked about burning or other unpleasant sensations in the esophagus, like @kozlo52 @craig7 @waterboy @windwalker @kdubois. I'm hoping they may have some input on the constant esophageal burn, and perhaps they will also have some thoughts on the medications not helping, the difficulty getting sleep and the LINX procedure you are considering.

@vickie53 – have you found anything that brings even temporary relief to the burning feeling?

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I might get relief for a few minutes when I eat a popsicle.

@waterboy

Lisa, I am not a Dr, or medical professional, and the only experience I have had is a 3 mm hiatal hernia, 4 inch segement of Barrett's, multiple RFA treatments (the first was the worst… burning 3 microns of esophagus for 360 degrees over 4 inches… it wasn't the time to go to KFC for some extra crispy.
Most of this was done at UW Madison clinics, Last time I went to Mayo's Barrett's clinic…. a good move.

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Thank you. I am considering, but I am nervous about going so far without family close. I would be totally on my own but after I see my gastr doctor September 6th I will know more.

Thank you. I hope your doctor appointment goes well.Hope the Linx information is helpful.

@vickie53 Hi Vicky. Sorry that your throat is giving you a fit. Along with popcycles, you may want to try honey. I had GERD, aka acid reflux. I had it so bad that it hurt to breathe. I honestly thought I must have throat cancer because of the constant burning. I took prescription strength Prilosec for a short while and followed the diet and directions to prevent the reflux. It all worked for me. You will know more after your visit with your dr. I have not heard of LINX either; what is it?

@windwalker

@vickie53 Hi Vicky. Sorry that your throat is giving you a fit. Along with popcycles, you may want to try honey. I had GERD, aka acid reflux. I had it so bad that it hurt to breathe. I honestly thought I must have throat cancer because of the constant burning. I took prescription strength Prilosec for a short while and followed the diet and directions to prevent the reflux. It all worked for me. You will know more after your visit with your dr. I have not heard of LINX either; what is it?

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Small titanium magnets placed on a wire around the lower end of esophagus.
I was looking on computer for any treatment for acid reflux.
Thank you for your response.

@coquifoife

I had not heard of LINX. I had a fundoplication 9 years ago. I also have gastroparesis and esophagitis. I’m scheduled for a G-POEM procedure at Emory 9/27. I will look into LINX at Emory. Best of luck to you.

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Good luck tomorrow.

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