Husband diagnosed with bladder cancer: I feel so alone

Thanks, I spoke with the nurse navigator yesterday. They consider it a reoccurance. Now we are just waiting for biopsy to be scheduled. After that , treatment options will be decided on. It's just discouraging that we found this out after he finished treatment. I'm trying to stay positive.

Oh @ljean63. I’m sending you a big hug. I can imagine that you’re both feeling defeated. I moved both your messages to your original discussion so that you can continue to connect with @sandielegal @ryman @maydayaz @naturegirl5 @bonniewhite56 @gingerw @plugger and others who understand.

I know exactly what you mean about thinking of all the questions you could’ve and should’ve asked but didn’t think of during the appointment. You were understandably in a state of shock. I can see you’ve thought of good questions to ask as posted here. Do you still have your nurse navigator and a contact number? I suggest starting with the nurse navigator to get answers to your questions and, if necessary, schedule a new consult to discuss next steps.

I haven't been on for awhile. My husband finished his bcg treatment. We had his follow up cystoscopy last Friday. We were not even thinking that there could be bad news. There are two small tumors in his bladder that now have to be biopsied. Now I realize we didn't ask enough questions, like is this part of the original cancer , or is this a reoccurence , or does that not even matter? We're feeling a little defeated at this point.

My husband was diagnosed with high grade t1 in January. He had tumor removed and finished bcg about a month ago. He had follow up cystoscopy last Friday and there are two small tumors. We did not expect this at all. Now he has to have a biopsy. Anyone else have a similar experience? I'm trying not to stress.

I am so sorry. My husband had bladder cancer. The bladder was removed and he did well. My brother had bladder cancer. They removed the tumor and he had chemo. He also survived.

Dearest Mayday, Keep your arm and legs inside the vehicle…… it is an “E” ticket ride to be sure.
I experienced the worst and the best in what seemed to be each and every treatment scenario. Celebrating Seven years I am still not sure I believe I won! Faith, family and friends helped but truthfully nothing I read put my mind at ease. I put effort into finding joy or humor daily (losing and depression sinking in) I luckily saw enough medical professionals and asked for help!

My Treatment 30 Radiation, They only took Five minutes. 5 Chemotherapy treatments over tree days so 15 days of chemo.

My complications retaining fluids, sleeping more and more.
Nausea didn’t being until all treatment had ended over two weeks prior. I wasn’t prepared for the chemo and radiation to feel so cumulative! I just felt that now it was over I would get better and the truth was not like that! This too shall pass, and The other side of the coin, The worst and the best of my getting Cancer is I see that glass is half full. I have to walk in faith and I fall all the time! Always available!

HI, Sandie! I was just diagnosed with a Papillary Carcinoma with micropapillary features - also a rare version of bladder cancer. It's a club I never thought I'd belong to, yet here I am. Can you talk a bit in general about dealing with rare forms of BC?

Would you mind sharing which doctor you had at the Mayo Clinic? Which location and how you felt about the doctors care and thoroughness.

Thanks, bonnie

@plugger Thank you for sharing your health story with everyone! How are you doing these days? What other tips would you like to share with those of us on a cancer journey?
Ginger

I was diagnosed with bladder cancer, prostate cancer and leukaemia all within the same month just over 5 years ago. The fact that anyone has a cancer diagnosis is enough in itself as there is a lot to learn about our respective cancers so your concerns are understandable but now that you know the diagnosis it is important to maintain a positive outlook and I suggest learning as much as possible about the cancer from sites such as this but be careful of information on the internet and if unsure check it out.
The suggested treatment of BCG is reported to have around a 70% success rate, some people handle it better than others so it would be worthwhile getting feedback from within the group about their experience with BCG. In my case I ended up having 4 lots of 6 intravesical infusions and whilst I had no issues with the treatment and handled it well unfortunately I am among the 30%, my Urologist believes it is my compromised immune system because in layman terms the way BCG works is to seek out the diseased area which then becomes inflamed and irritated which sends a message to the immune system to call the troups to order and attack the invader. Many patients find that this provides them with a total cure and I pray that your husband adds to this list. All the best later this month and be there for your husband to provide him with support through this difficult period also remember to look after the carer as your good health is extremely important.