How were you diagnosed with Crohn's?

Posted by szelisk @szelisk, Jun 3 11:13am

I'm switching GI md's since my previous one (although very nice) not very aggressive at finding solutions. I have been diagnosis with Celiac (confirmed on several biopsy's), Microscopic colitis (again multiple biopsys) with a suspicion of Crohn's or UC. My genetic testing shows I have a predisposition for Crohn's and extremely high SAA level. The last colonoscopy (upset an endoscopy wasn't performed as well) showed some lession or ulcer on my small bowel. He actually had a hard time getting into my small bowel. Unfortunately , the only thing I was told is it wasn't normal and wait until symptoms get bad again. Diarrhea at least 5 - 7 times a day on a good one. All watery or slushy. Pain in the back under the ribcage with burning. Feels like I'm wearing a corset with a heating pad on it. This pain comes whenever I eat or have a bowel movement. Not absorbing again. I was told there was no way to diagnosis Crohns by any test. Is that your experience?

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I’m so sorry you are going through this! I was diagnosed with Crohn’s in 1985 during a bowel resection. When the GI biopsies your intestines, it will show if it’s Crohn’s or UC. The surface of the tissue has a certain characteristic that is indicative of Crohn’s. My ileocecal valve was removed along with 18” of intestine.
You need to be aggressive and go to your GI with questions and don’t be shy about asking the Dr to explain everything. The Drs it seems like have a mindset to lump all Crohn’s patients into a one size fits all category. Be your own advocate!
I wish you well in your journey! ❤️


Have you had stool tested for EPI? I had similar symptoms and finally diagnosed


I have uc. They Ofcourse are very close. My gastro went by my history a colonoscopy and fecal testing. Good luck to you. I hope you feel much better very soon. 😊🙏🏻


My son was diagnosed by colonoscopy. He had to have half of his colon removed later.

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