I've been googling a lot to find out how to understand more about the skin biopsy results… can't find anything. And, my doctors won't commit.
2 1/2 years ago, my skin biopsy result was 3.18 (definitive small fiber neuropathy, in my case, idiopathic). Recently, that same test had a result of 0.62… so quite a difference over not a very long time (considering that I hope to live another 30-40 years!).
I'm trying to learn more about how to understand that change over time.
The doctors respond only by saying:
1. The test results doesn't imply anything about the symptom experience (meaning someone who's barely below range might have symptoms worse than someone with a very low number).
2. They can only test specific areas, so the results only tell you about that spot, not about the general state of the nerves.
That said, since I have confirmed small fiber neuropathy readings in my foot and thigh as well, I'm trying to get insight as to what I can expect in the future. Or, what treatments work (none so far and in three years I've tried half-a-dozen drugs).
Thanks in advance,