How to cope with stress/anxiety, waiting for PSA blood test

Posted by philh59 @philh59, Sep 28 8:43am

I was diagnosed prostate cancer six years ago. I had my prostate surgically removed. Each year about this time I go for a PSA blood test. for some reason, the stress and anxiety for me this year is unbelievable. It’s keeping me awake. I think about it constantly. I have my test on Wednesday. Is there a suggest to help me deal with the ridiculous stress? I’m going through right now? Thank you for your help. Appreciate it.

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Profile picture for jimgaudette @jimgaudette

@psychometric I have been waiting anxiously for monthly or bimonthly PSA results for over nine years. It doesn’t get any easier but you do get used to it. It sounds like you have already figured out your personal antidotes to the anxiety. Good for you!

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@jimgaudette thank you for your reply. Best of luck to you!

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Profile picture for northoftheborder @northoftheborder

@tjv1156 asked ❝why did your team say your cancer *will* return?❞

Because I'm stage 4: my cancer had already metastasised to my spine before it was diagnosed.

Received wisdom at the time was that castrate resistance on ADT would last only 18–24 months, then I'd have to progress to other measures like chemo or Pluvicto, and I'd die a couple years after that. But that was before there was as much data from new clinical approaches like starting on an ARSI early instead of waiting for castrate-resistance, treating oligometastatic cancer with "curative intent," etc. Things look much more promising for us now.

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@northoftheborder My oligometastatic cancer metastasized to my sacrum. It was radiated and I was put on Lupron and Abiraterone for three years and am still castrate sensitive. This past year I have been off ADT and my testosterone is returning. I have had PSA < .1 for four years now. My Gleason score was 3+5. I think that your doctor may have been seeing your situation somewhat negatively based on my personal experience, or maybe doesn’t want to build false hope. Personally, hope keeps me going and dealing with whatever happens.

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Thank you for your reply. Best of luck to you.

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Profile picture for psychometric @psychometric

This is a timely topic - I have an appointment in a couple of hours to go over my first post-op PSA test. My post-RARP pathology was less encouraging in several aspects (EPE, SVI, large cribriform) than my original biopsy, so the PSA test has perhaps loomed larger than it otherwise would have.

Here is what has helped me not be crushed by PSAnxiety: my Christian faith, including prayer and daily Bible reading, active church membership and fellowship, exercise (primarily running), parenting a middle schooler (!), focusing on and finishing a few side projects at work, encouragement and wisdom from this message board

Here are some things that haven't helped: fixating on this one aspect of my life (i.e., PSA, PCa), spending too much time on this message board trying to predict the future and figure out the optimal way to eat, sleep, take vitamins, etc. etc. etc., and a less-disciplined post-op diet.

I tend to be all-or-nothing so striking a balance between harmful internalizing (whistling in the dark) and constantly researching, talking, thinking, worrying about the dreaded 0.2 ng/mL is not as easy as the two lists above imply, but in general, life seems better when I spend less time thinking about myself. There are numerous ways to do this, some probably more healthy than others. Is it better to serve in my church food pantry than to watch several hours of funny pet videos on YouTube? I don't know - there seems to be a season for everything.

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@psychometric
Hang in there and don't worry. You are starting a journey. Just go with the flow, knowing that each day is a blessing and each step is adding another day.
Good luck for a very long and happy journey.

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Thank you so much for your kind comments. Best of luck to you

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When stress and anxiety start getting to you, try inhaling four counts and exhaling eight counts. Repeat four to sixteen times. Another method to lower your cortisol and adrenaline (the stress hormones) is to lie on your back or sit in a comfortable position with your eyes closed and slowly relax your toes, your feet, your ankles etc up to your neck, your jaw, the back of your head, the top of your head, your forehead, your eyelids and then your eyes. Stay here as long as you feel comfortable. These exercises stimulate your parasympathetic nervous system which is your rest and digest system.

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Thank you so much. I really appreciate it.

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Profile picture for northoftheborder @northoftheborder

@psychometric I get what you say about spending too much time in this forum looking for answers. For me, it's been the opposite: a way to get out of my own head and provide information and support that might be helpful for others. I wish I'd known about it when I was first diagnosed in 2021, paralysed in a hospital bed. That was a very lonely time, even with my family around me, and I could have used support myself then (I still do, sometimes).

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@northoftheborder

I find the information you share very helpful and I’m grateful for it. Thank you!

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Profile picture for philh59 @philh59

Thank you for your reply. Best of luck to you.

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@philh59 did you get results yet !? hoping PSA is still slow and low !! ( for all of us !...)

I think many of us are ' here' because about 10-15 yrs ago, the mantra about PC testing was "if you are older, its no big deal.. they dont even treat it!" and during many of my annual physicals, they did not do PSA/DRE..I wondered why ..I know my PSA tests became sporadic..but always around 1 ( since I was early 40s) when i did get one and was assured I would never have anything to worry about...

that is until May 2025...when I went in for my annual check up for my kidney stone problem from a yr earlier- also I was curious about testostrone patches for workouts..PSA came back in 40's..then a few weeks later 2nd test was low 50's...MRI then the bad news..I was floored...luckliy I didn just buy the patches on line..which I started to do !

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Hi , thanks you fir your reply. No results yet. I am expecting them at some point this afternoon. I wish you the best of luck!

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