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How Long Since Your Diagnosis?

Posted by mikeg73 @mikeg73, Aug 24 9:15am

If you don't mind, I'd like to know how long it has been since your diagnosis of Prostate Cancer? Also, how has it impacted your life (physical activity, travel, enjoyment)?

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

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ecurb | @ecurb | Aug 30 11:51am
In reply to @denkea "1995 ~~~ Radical Prostatectomy 1996 ~~~ Salvage Radiation. 1996 - 2008 PSA negligible. 2008 ~~~ PSA..." + (show)
Profile picture for denkea @denkea

1995 ~~~ Radical Prostatectomy
1996 ~~~ Salvage Radiation.
1996 - 2008 PSA negligible.
2008 ~~~ PSA increased but stayed pretty much below 3.0
2022 ~~~ PSA started to climb
PSA is 22 ~~ Had PSMA -- no detectable cancer.
Started lupron quarterly injections for 15 months. PSA then was < 0.1
Took a lupron holiday for 18months and the PSA started to climb again.
At 12 another PSMA scan ~~ no detectable cancer.
Decided to wait and see for a few months.
PSA was 32 in January this year.
Had another PSMA scan and still no detectable cancer.
Went on Nubeqa and Orgovyx in March.
PSA in June was 4.
PSA this August was .7
30 years. 79 y.o. and still above the grass.

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Quite an Elongated story. PMSAPET scan let you down as something is THERE. Glad your still hanging in there. I m 3 years into this and I d be embarrassed to compare my results with you. You ve been thru a poop load of testing. Take care.

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denkea | @denkea | Aug 30 12:32pm
In reply to @ecurb "Quite an Elongated story. PMSAPET scan let you down as something is THERE. Glad your still..." + (show)
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Quite an Elongated story. PMSAPET scan let you down as something is THERE. Glad your still hanging in there. I m 3 years into this and I d be embarrassed to compare my results with you. You ve been thru a poop load of testing. Take care.

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Yeah But ~~~ What are ya gonna do?!?
I was diagnosed at 48 y.o. and given a 5% chance of making it to 60 y.o.
Now I'm pushing it even more. 😉

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mikeg73 | @mikeg73 | Aug 30 1:01pm
In reply to @denkea "Yeah But ~~~ What are ya gonna do?!? I was diagnosed at 48 y.o. and given..." + (show)
Profile picture for denkea @denkea

Yeah But ~~~ What are ya gonna do?!?
I was diagnosed at 48 y.o. and given a 5% chance of making it to 60 y.o.
Now I'm pushing it even more. 😉

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Hello @denkea, how old are you now?

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steveapplebaugh | @steveapplebaugh | Aug 30 3:37pm
In reply to @jimgaudette "Welcome to the journey. As a nine year cancer survivor I advise: Love as much as..." + (show)
Profile picture for jimgaudette @jimgaudette

Welcome to the journey. As a nine year cancer survivor I advise:
Love as much as you can
Eat healthy fresh foods
Exercise daily
Don’t drink alcohol
Seek out the best medical care
Become informed but not obsessed
Find balance in your life
Use the entire journey as an opportunity for personal growth

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Thank you very much, Jim, for your excellent advice. I am definitely following the list.

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retireditguy | @retireditguy | Aug 30 5:53pm

Hi Mike. About 17 months since diagnosis, 14 months since NS RARP. Was continent immediately after the catheter came out but took several months to get past the occasional minor urine releases as I figured out the new normal. Had ED after surgery but improved slowly but steadily until reaching pre-surgery capability at 14 months (although there were times I wondered if I'd ever recover). Daily 5mg Cialis (generic) and on demand 100 mg Viagra (generic), but no negative side effects. I think knowing BCR can happen at any time, and knowing how fortunate I was to not have permanent side effects from the surgery, has made me appreciate my health and really appreciate just how suddenly everything can change. These days, while I'd have preferred to have missed this experience, it has helped me realize how fortunate I've been and helps me keep other challenges in perspective. I think I more fully appreciate my days for having had this experience, and my wife for the tremendous support she's given me through all this. Best wishes.

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ecurb | @ecurb | Aug 30 6:07pm
In reply to @denkea "Yeah But ~~~ What are ya gonna do?!? I was diagnosed at 48 y.o. and given..." + (show)
Profile picture for denkea @denkea

Yeah But ~~~ What are ya gonna do?!?
I was diagnosed at 48 y.o. and given a 5% chance of making it to 60 y.o.
Now I'm pushing it even more. 😉

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God determines when we leave planet earth- my beliefs

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